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A Parkinson’s Vacation

You have Parkinson’s disease is something we didn’t expect to hear. It’s a quiet debilitating disease. Four years in and the Doctors are telling us…”If you can, travel NOW!” So while it is hard to do, I, his wife/caregiver search for handicap accessible vacation locations.

The new normal

We were used to walking all day, trails, caves, hills, stairs, sight seeing. Parkinson’s disease has taken that away from us. The new normal for us now is to schedule the use of an electric wheelchair, first floor handicap accessible hotel rooms, elevators, handicap accessible restaurants, attractions etc. Packing not only our luggage, but medical equipment we might or will need once we arrive at our destination. Double checking that his meds are full and that medical information is up to date should anything go wrong while away. Knowing where the nearest hospital is, the nearest drug store, again just in case.

Making memories

We see the looks and stares. Yes we know you feel sorry for him, for me. So young, so helpless We know that we are holding up lines, I am sorry for that. We will continue to travel until he or I can no longer. We enjoy our travels and make the best of them. I thank the Doctor for being up front and telling us to travel. We thought we had time. We are making memories… memories with Parkinson’s because we can…because we have to.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The ParkinsonsDisease.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Dan Glass moderator
    2 months ago

    The world is ours to travel, experience, and breathe in. I’m glad you’re still out and about, too. These last few years and next ones will be busy for my wife and me, too.

    I love your attitude toward the memory making!

    Keep seeing the world, and pay the staring hordes no mind.

  • bala
    2 months ago

    I am also doing the same thing. Last year we did pera sailing and ten days of Cruise. Last month I climbed the harbour bridge and next week I will be in Sunshine coast. Thank God my family accepted my disease and not annoyed with me.

  • April.Sluder moderator
    2 months ago

    That sounds amazing @bala! I’m so happy to hear you have a supportive family. April – ParkinsonsDisease.com Team

  • Sharon Krischer moderator
    2 months ago

    RudyLillee7, my husband and I have been traveling a lot since my diagnosis with PD. As you say, we are making memories with Parkinson’s because we CAN. Even with all of the obstacles you mentioned, the fact that you have not given up is the best thing for your husband, and for you. You are giving him a “normal” life where he can be among other people, see the world and spend time with you. Wishing you the best on your travels with PD.
    Sharon ParkinsonsDisease.net moderator

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