Come out spinning: A tale for the newly diagnosed
My story started like most PD stories. Referred reluctantly by my GP to a neurologist. Diagnosed in 20 minutes. My wife and I went to a local casino / hotel, for what we figured would be our last normal weekend. That was over 8 years ago.
My last trip to my MDS, I left him shaking his head. "Why are you not I worse?" Eight years ago, exercise was encouraged, not at the level it is today. At 5'11" and 220lbs. I figured could lose the weight anyway, so I joined a gym.
Discovering spin class
For all the movement and different machines, I was bored. Then I discovered spin class. The effects of one hour of spin class could be felt for three days, just in time for another class. In the summer I golfed as well as still spinning.
During this time my MDS / Neurologist and I, worked at getting the meds right. My marriage survived the Mirapex OCD period. I survived the too much levodopa, the not enough levodopa. For the past 3 years, I have been on the same med regimen. Some days it is good, some days not so much. But that is life as a Parkie.
Living with Parkinson's is a balancing act. The right amount meds, and the fewest side effects. The right amount of exercise for your physical abilities and interests. You can do more, push yourself. Enough positivity to combat the depression. Being part of your families normal routines for as long as possible.
And last but not least. Not getting so wrapped up in your own PD issues that you forget about those that love you and are there for you. There is no shame in asking for help putting your jacket on in a restaurant.
I know I am extremely lucky. I never have a day I am 100%, but 80% will do. Remember "It's only inconvenient."
Have you or your loved one had issues with medication timing?