Hello my name is pain.

When people say Parkinsons does not hurt I tell them try Having what I call a Charlie Horse in your leg for an hour hurts. The cramping in my hands that turn into claws hurts. Tremors in your hand muscles will cramp like getting writers cramp. It goes away quickly if you stop writing but it lasts and lasts for us. What Parkinsons does to your muscles over time hurts. Not everyone gets the same symptoms so it is different with each of us. That is why we have our Parkinsons. Having it for 8 yrs now I walk like a zombie. Drop things and hand tremors make eating an adventure at times. But I get up every day and fight this disease with all I have.

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Comments

View Comments (6)
  • Dan Glass
    5 months ago

    Never stop fighting! May you find happiness in all your days.

  • denimarie07
    1 year ago

    yes pain and Parkie’s mikep and Ginanne I also suffer from pain in my right leg,shoulder and arm. Exercising helps me heaps as well I have discovered that the garden is such a wonderful place for mental and physical support. I must mention that with the twisting of my foot and the curling up of my toes my shoes to wear out so quickly. I am also blessed to have a dog who is always just one or two steps behind me.

  • Ginanne
    1 year ago

    I understand. I, too, have pain. I’ve had Park’s for 7 years. I have less pain when I exercise. I used to push a lawn mower, but we haven’t had rain for over 2 weeks. I am joining a rock steady boxing class. It is supposed to keep Park’s from getting worse and may even improve your symptoms and improve how your brain works. I have to do something. I can’t just let this disease win.

  • chris.hall moderator
    1 year ago

    Thanks so much for sharing that, Ginanne. I’m so glad you’re deciding to be proactive about managing your symptoms through exercise. We’ve heard so many wonderful things about Rock Steady Boxing from other community members. Please keep us updated in your progress and thoughts about Rock Steady Boxing! We’d love to hear your story, which you can submit here: https://parkinsonsdisease.net/stories/ – Chris, ParkinsonsDisease.net Team Member

  • chris.hall moderator
    2 years ago

    Thanks for sharing your story, mikep! I’m so glad to read about your positivity despite all of the challenges. You have to make a conscious choice to fight! I’m sorry to hear about how much pain you experience. Have you found ways to help alleviate some of the pain? Thanks again for sharing!

    Take care,
    Chris, ParkinsonsDisease.net Team Member

  • denimarie07
    1 year ago

    yes pain and Parkie’s mikep and Ginanne I also suffer from pain in my right leg,shoulder and arm. Exercising helps me heaps as well I have discovered that the garden is such a wonderful place for mental and physical support. I must mention that with the twisting of my foot and the curling up of my toes has caused my shoes to wear out so quickly. I am also blessed to have a dog who is always just one or two steps behind me.

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