Kim1's Story

By kim1

1 min read

I have had PD for a whole year. Well, probably longer than that. But was not diagnosed after being quite ill for a few years. I find eating a problem now as soon as I have anything to eat in the mornings I feel terrible. I start freezing and losing my balance the whole day.

Finding a diet for PD

Can anyone suggest a starting point for a diet? I have only really just clicked that it’s what I am eating, as by late lunch I am feeling light headed because I haven’t eaten.

This morning I just had a banana and a mandarin and so far feel fine. I would love to have some cereal and toast and honey but am not sure what is setting me off.

Thank you for opportunity to have a voice on this problem.

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Angela Robb Member
Thank you Kim1 for sharing your story. You certainly are not alone in addressing meals and balancing medications. As the cook in our house and carepartner, I'm always trying to think of my husband's medication schedule and balancing his protein intake. Everyone's schedule is so different and with Parkinson's, every day or moment seems to be different. My husband tries to eat little protein for breakfast, a little at lunch and most of his protein at dinner. He also consulted with his neurologist about eating a half hour before he takes his medication or two hours after. It might be helpful to try to take a couple of days to journal your meals, medications and activities and then share the journal with your neurologist to see how you might be able to find a more balanced approach. Maybe even see if your neurologist can make a recommendation to a nutritionist who may be able to help? Sharing your concerns with your medical provider is a way to hopefully help you find some answers. I wish you all the best and hope that you will share your ongoing story. -Angela PD carepartner and <a href='https://parkinsonsdisease.net' target='_blank'>ParkinsonsDisease.net</a> Community Team Member
1. kim1 Member
 Thank you for all your suggestions very much appreciated
j9kruger Member
I find that i have no appetite. Perhaps my PD medication. When i do eat, especially dinner, i end up with stomach cramps, acid reflux and painful gas. Is this all due to PD?
1. Jessica.H Community Admin
 Hi @j9kruger, I am sorry to hear you are experiencing these symptoms. Those with PD can experience gastrointestinal issues. We always recommend speaking to one's doctor about new or developing symptoms, if you haven't already. I have included an article on GI issues <a href="https://parkinsonsdisease.net/symptoms/gastrointestinal-issues-constipation/">here</a>. Hope this is helpful and you find some relief. Kindly, Jessica, <a href='https://parkinsonsdisease.net' target='_blank'>Parkinsonsdisease.net</a> Team Member 
2. j9kruger Member
 Thank you!
kim1 Member
It has now been two years since my diagnosis and over the last three months have struggled badly with balance problems snd frequent nasty falls .....my feet are continually swollen as are my ankles as they always twist when I fall which puts me on a bit of a treadmill for disaster as my feet are always so painful I am at a lose as to how to stop all that the s horrid freezing and over balancing I have appointments with my specialist next month and am in contact with the Parkinson’s support person who is a very sympathetic listener which is the impasse I am at At the moment I am just venting I will manage to sort it some how My last fall two weeks ago I hit my left ear and split the lob open j and have had worsening balance probs since so am wondering if I have damaged my inner ear. Something for the specialist to work out I suppose