Does anyone else have toe cramping?

When medication starts to wear off my big toe feels like the circulation is being cut off. I take meds every 3 1/2 hr. It helps most of the time. Night time seems worst.


Community Answers
  • perry336 author
    4 months ago

    I agree with Dan. I don’t feel the need too hide the fact that I have Parkinson’s. I want people to know I’m hear to fight it. If we let others know, we can all fight it together.

  • Dan Glass
    4 months ago

    My foot gets some weird cramping issues with dystonia. It feels like my toes get stuck at a 90° angle down and it feels like pressure is on my top of my foot near the bottom of the leg. I also feel like my toes feel weird (maybe similar to what you describe). I get a lot of my dystonia info from a facebook site called
    #nevergiveup parkinson’s and dystonia

    I find a lot of people there understand more than I have experience to describe.

    That said, I’m just a patient, not a doc, so please check with yours.

    PS – you need the # in that name to find the group.

  • perry336 author
    4 months ago

    Thanks Dan, I’ll try anything.

  • Chris H. moderator
    4 months ago

    Great question, @perry336! While we wait for others to chime in, I thought I’d share this article with you where our contributor @eurekadan talks about cramping in his toes: https://parkinsonsdisease.net/living/to-be-or-not-be-out/. Thanks for submitting this! – Chris, ParkinsonsDisease.net Team

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