Who is the Future of Parkinson's Advocacy?In 2018, I was given the opportunity to write for Health Union. Having previously blogged about my Parkinson’s experience for the previous (almost) 2 years, I felt honored to be... By Dan Glass3 min readBookmark for laterReactions0reactionsComments0 comments
Glad To Know What’s Wrong With MeIn 2021, I was diagnosed with essential tremors in both hands. After about 12 months, the shaking went from annoying to bad. I found my hand writing needed extra time... By Bruceski2 min readBookmark for laterReactions0reactionsComments1 comments
When is it Time to Use a Walker?The first time my mom suggested that my dad use a walker during his off periods, he rolled his eyes. He wasn't ready to rely on the little 4-wheeled contraption... By MaryBeth Skylis2 min readBookmark for laterReactions0reactionsComments0 comments
Nighttime StressorsI been having weird dreams especially when they put me on Carbidopa/Levodopa. I get sleep paralysis where I’m half awake and half asleep. It started when the doctor increased my... By Leatherneck Joe1 min readBookmark for laterReactions0reactionsComments1 comments
Rigid FingersThe fingers of my left hand (predominant PD side) were getting stiffer and keeping them together, made them difficult to use. As I was attempting to polish my nails, I... By debbielamsma1 min readBookmark for laterReactions0reactionsComments1 comments
Dare to Care about Self-CareManaging my Parkinson’s disease is a daily challenge. Often it feels like a burden and a chore. It can feel like having a full-time job (but frustratingly without the paycheck)... By Shamsa3 min readBookmark for laterReactions0reactionsComments5 comments
Journey Is A Stupid WordWho the hell came up with the word journey to describe living with a life long debilitating, progressive disease like Parkinson’s? What a ridiculously, stupid and demeaning term to use... By Cindi6 min readBookmark for laterReactions0reactionsComments3 comments
My Parkinson's experienceHello there, well here I go. I'm 60 and started to experience parky symptoms around 2014. I was diagnosed "officially" in 2019. During those 5 years and on, I continued... By CommunityMember1af90c1 min readBookmark for laterReactions0reactionsComments0 comments
Rasagiline and Fatigue: A Follow UpIn a previously published article, Posy tried to find out if anyone else thought that perhaps Rasagiline was making them tired. Posy was taking 1 tablet a day first thing... By Posy2 min readBookmark for laterReactions0reactionsComments16 comments
Parkinson’s PauseWhen I was first diagnosed, I totally threw myself into all things Parkinson's related. A zoom support group, an online support group, reading Every Victory Counts (practically in one sitting)... By Thea Destephano2 min readBookmark for laterReactions0reactionsComments1 comments
Frustrating Fluctuations in (dis)AbilityIf I had a nickel for every time I heard the words, "You have Parkinson’s disease? But you look fine/normal/human." (Choose your preferred term.) Well then, I would be able... By Shamsa3 min readBookmark for laterReactions0reactionsComments6 comments
Up and Down All the Parkinson's DaysEver since I felt my first tremors, there have been a lot of different days of Parkinson’s. Obviously, some days are better than others. Nevertheless, each day is a statement... By Dan Glass3 min readBookmark for laterReactions0reactionsComments3 comments
We Can’t Always Wrap Everything Up in a Nice BowOne thing that often frustrates me about being a writer is that there’s always this expectation that we can wrap the end of the story up with a neat little... By MaryBeth Skylis2 min readBookmark for laterReactions0reactionsComments4 comments
What Can We Do When Fatigue Strikes Suddenly?Posy expects that we all have experienced "hitting a wall." At these times, we desperately crave going back to bed. It may be that we have worked productively all morning... By Posy3 min readBookmark for laterReactions0reactionsComments8 comments
There Is Not Enough Time To Do It AllPosy finds that having Parkinson’s disease (PD) narrows her range of skills. Do you have PD? If so, Posy would like to know how you manage your time and energy to... By Posy1 min readBookmark for laterReactions0reactionsComments11 comments
The Love and Limitations of Levodopa: From a Levodopa JunkieWhat role does levodopa play in my Parkinson’s disease management? If I was a car, levodopa would be my gas. It fuels and powers my broken body in a way... By Shamsa4 min readBookmark for laterReactions0reactionsComments10 comments
Why I Use MyChart and TelemedicineWhen I was first diagnosed with Parkinson's disease in August of 2020, the pandemic had just started, and although MyChart was available through most doctors and hospitals, it was not... By Thea Destephano2 min readBookmark for laterReactions0reactionsComments2 comments
Retired Life in the Presence of Parkinson's DiseaseAfter 3 years of phased retirement, getting mentally and emotionally prepared for the event, retirement happened. And, as Nina Simone sings, "It's a new dawn / It's a new day... By Frank Church4 min readBookmark for laterReactions0reactionsComments4 comments
Parkinson’s Disease Convinced Me It Was Time to RetireTo many people reading this blog post, you may have been dreaming of retirement for much of your adult life. Not me. An old saying goes, "Some people work to... By Frank Church3 min readBookmark for laterReactions0reactionsComments2 comments
An Adjustment for Tremors: Deep Brain StimulationSitting, facing the team of neurological professionals in front of me, I found myself in a conundrum. In all my posts about Parkinson’s, I’ve always been open about the fear... By Dan Glass4 min readBookmark for laterReactions0reactionsComments11 comments