Living

Posy finds that having Parkinson’s disease (PD) narrows her range of skills. Do you have PD? If so, Posy would like to know how you manage your time and energy to...

What role does levodopa play in my Parkinson’s disease management? If I was a car, levodopa would be my gas. It fuels and powers my broken body in a way...

When I was first diagnosed with Parkinson's disease in August of 2020, the pandemic had just started, and although MyChart was available through most doctors and hospitals, it was not...

After 3 years of phased retirement, getting mentally and emotionally prepared for the event, retirement happened. And, as Nina Simone sings, "It's a new dawn / It's a new day...

To many people reading this blog post, you may have been dreaming of retirement for much of your adult life. Not me. An old saying goes, "Some people work to...

Sitting, facing the team of neurological professionals in front of me, I found myself in a conundrum. In all my posts about Parkinson’s, I’ve always been open about the fear...

This all began when my wife turned me on to a procedure called focused ultrasound (FUS). This is similar to deep brain stimulation (DBS), though, in its most important aspect...

To a person living with Parkinson's disease, anxiety is probably an all too familiar, hideous condition. Posy's story may ring a few bells. Following a serious case of streptococcal pneumonia...

I have said I do not, and will not, accept Parkinson’s disease (PD). I do not deny that I have it. I see doctors and take medications. But acceptance, as...

We recently visited Jacksonville Beach, Florida, the home of The Tournament Players Club Sawgrass golf course (TPC Sawgrass) and the host of the Players Golf Tournament on the Professional Golf...

I must admit that since being diagnosed with Parkinson’s disease (PD), I have had bouts of positive and negative thinking. Since everyone has a different experience dealing with PD, I know...

Parkinson’s is a funny old disease to get your head around. I do not mean funny in the classical "LOL" sense ... but I mean funny in the sense that...

While doing stretching exercises I often listen to music to help keep rhythm and make it a little less boring. One day the Beatles iconic song "Let it Be" began...

In life, there are 2 sides to every story. For instance, my whole dealing with Parkinson’s thing says that in order to be optimally functional, I need to avoid timelines...

Last year, I sent my dad a pair of adaptive shoes and an adaptive (magnetic) shirt, thinking that they might be able to take some of the frustration out of...

Recently, I stayed at an inpatient rehabilitation facility due to an exacerbation of my Parkinson’s disease. During my 3-week stay, I decided to compare the amount of time that I...

In 2013 I received a diagnosis of a rare movement disorder known as primary orthostatic tremor which affects your legs only upon standing. The tremors stop as soon as you...

Ask not what others can do for you, ask what you can do independently for yourself. My apologies for borrowing inspiration from President John F. Kennedy, I feel that we...

Navigating mealtime while managing Parkinson’s disease (PD) can feel like no small feat some days. Many people with Parkinson's struggle with dysphagia, or difficulty swallowing. This makes many foods hard...

Recently, members of our community discussed shingles. Shingles symptoms are uncomfortable, and they can be more severe when combined with autoimmune diseases. It is always an unwelcome surprise when shingles...