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Struggle to equilibrate and cope

Good day fellows,
I did start noticing early but mild symptoms of Parkinson at the age of twenty-nine. Now, I am 41 and disease is more evident and noticeable both for me and my counterparts.
• My right hand & arm cannot resist ‘tremors’ unless I regularly take my medicines. Initially medicine would last, it’s impact for longer period (more than 10 hours), but now it has been reduced to at max 2.5 hours.
• At times, when I need to handle situations which demand mental focus, it causes the tremors to trigger.
• I am experiencing slight balance issues as well.
• Due to Parkinson, I am reluctant to take any new leadership roles.
• I feel less motivated and tired during the day.
• At times, I feel very sleepy/dizzy. It is very embarrassing especially while I am at work environment.

My main symptoms
• uncontrollable shaking and tremors.
• slowed movement.
• balance difficulties and problems standing up.
• mild stiffness in limbs.

My Bio
• Gender: Male
• Age: 41
• Marital status: Married
• Children: 2 (age 9 & 12)

Education & Work Experience.
I hold a PhD in my field of interest and am pursuing my passion of being an educator (Professor at university).

My fears:
• My healthcare consultant is not certain about the time of transition from stage 2 to stage 3. This uncertainty hinders my decision-making ability, for example, buy a new car or switch my employer.
• At stage 3, will I be able to continue my employment and effectively contribute to society?
• Since I am young and at the prime of my career but feeling uncertainty if I will be able to maintain financial stability.

I am trying to stay positive and fighting with everyday challenges. I wish to be an active member of the community and family for at least one more decade, hopefully longer.

My suggestion to readers is
* Stay active and exercise daily.
* Eat healthy food. Talk to your nutritionist about diet stability plan.
* Create a 'rating system' to monitor your Parkinson progression. Share your findings with the neurologist during your visit.
Rating charts can be found by simple web search.

  1. Thank you for sharing your story. Your suggestions are very helpful. A rating system is a very important step in consulting with your neurologist. I hope you are seeing a movement disorder specialist to help you with the challenges you are experiencing.
    Please keep us informed as to how you are doing. Thea DeStephano Community Team Member

    1. Just checking in to see how you are. If we can be of any assistance please let us know. We care about you and your journey. Thea DeStephano Community Team Member

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