Questions for you and your care partner. Parkinson’s not only affects you but also your partner, caregivers, and family. Every so often, it is nice and, perhaps, necessary to have a conversation. You may find the answers to these questions interesting. This was a conversation with my care partner:
How much did you know about Parkinson’s before my diagnosis?
Did any member of your side of the family have Parkinson’s?
What were your feelings that day in the Doctor’s office?
In looking back at the early years, what was the hardest part of dealing with my diagnosis?
You attended a Caregivers Support group during the early years. How did that affect you?
My progress has forced you to give up or modify plans. What are the top three, and how do you feel about them?
I have changed physically, mentally, and emotionally over the Parkinson’s years. Tell me about the changes you see and how they affect you?
How have you changed over the same time?
When you look back, what would you have done differently?
As my illness has progressed, our relationship has begun to change from Care Partner to Caregiver. What are your feelings about that, and what is the biggest/ most difficult part of this transition?
The pandemic severely restricted our outside social opportunities. How has our relationship changed over the years?
What advice would you give to people just starting this journey?