Good morning Jessica,
Although I am sad to see someone else is suffering from the same thing which is very painful, but I'm glad that I'm not the only one. I have been searching high and low to find an answer. My MDS were totally brushing off my inquiry about if it has anything to do with the PD. Finally one of them told me that he's never heard of that. So I went back to the ortho which did my surgery 7 months ago and he said it could be from my back surgery. Although I don't think it is. I also get knots, at different areas including my thighs or buttocks which can be very painful for a few days until it resolve itself or is massaged out.
I also have severe tightness in my forearm which started this whole journey altogether and a big knot in my peck. Doctor gave me botox injection for the first time couple weeks ago which made the forearm much worse. He told me he had never done that in the buttocks so he was not going to do that for me. I would love to stay in touch with you and see what you find out. Please message me your contact information and we can get connected.
Oops I noticed I have many typos in my initial post. I do use the voice feature since I have trouble typing now. The darn thing switches the words after it types it in. 😛
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