My father passed away
My father was diagnosed with pd in 2004,over the last 3 years and with covid stopping people going out he seem to get worse faster,and also he started seeing allucinations and having psychotic episodes, which is very distressing ,is tablets were lowered and he was slowly taken off premapexul,which restricted his movement, when the hallucinations subsided he was started on a drug called antacapone along with the madapar 4 times a day which he struggled with to get much movement so they tried it 5 times a day ,he started to battle with the drugs on a daily basis to get spells of movement and when he could do things.over the last 3 months I noticed he become more detached from things,as he was unable to get any time to do things he liked to do .slowly he seemed to get depressed and started worrying all the time about silly things as he became more and more detached he wasn't sleeping at night due to worry so slept through the day and went down hill on a daily basis. He went to see his doctor and was put on a drug call quetiapine for psychotic behaviour and 3 weeks later he died ,he went into a world of is own he stopped communicating didn't want to eat or drink he also stopped going to the toilet to empty his bowls ,so was admitted to hospital for a enema and went down hill from there ,they say he was suffering from delirium, and numonia and died 5 days later.does anyone know about this drug quetiapine or was this just the last stages of parkinsons as he ad it 18 years .any comments welcome.
Hello, I'm so sorry to hear about your father passing away. It sounds like he has had a long road with PD. Each person is different with symptoms and progression. I can say my father aged 87 with PD and dementia has had some similar struggles with sleep, paranoia and some not great days as you describe above with your own father. His doctor did prescribe quetiapine as a sleep aid. I cannot give medical advice as the purpose to our website is to give support and resources to each other in the PD community. All I can say is that each case is very individual and finding the right doctor and medications are just a small part of support to a person with PD. Just as important is having the support of family and therapies like P.T., O.T. etc. to lighten the load. I can tell my father is starting down the road of the advanced stages like your own father experienced and unfortunately none of us lasts forever, particularly with PD. I hope you find peace in knowing you did the best for your father and now he is at rest. Blessings on you, Suzanne Troy, ParkinsonsDisease.net team member 
Thank you for sharing your story. One thing my husband learned while assisting his parents in their final years was that showing up and caring for them regularly allowed him peace of mind because he had no regrets after they passed. I don’t have anything to say about that medication-not my place-but it seems to me that you did what you could to be there for your father. Kind regards, Lorraine, parkinsonsdisease.net moderator My mum as now started blaming it on the doctor who gave him a drug called quetiapine for psychotic behaviour, which seemed to send him into a zombie like state .but he fought parkinsons disease for 18 years its only because he got it at 57 ,if he was 70 when he got it he would have been late 80s is she looking for things to blame it on ?
I'm sorry to hear that your mother is going thru a blame game. It's not really anything you can or cannot do about this disease. You run the gambit and get the best care you can and live life with as much joy and grace as you can. You do not die from PD. For sure it shortens your life. So what are you going to do about it? You make a choice to live with joy or with a grudge. We all have a life expectancy so we all have to make tough choices. Amen, Suzanne
I'm sorry but I have too disagree ,I watched over 18 years as parkinsons disease took my dad bit by bit ,and how pd is not classed as a terminal illness I will never now .there are a lot more treatments for cancer and in many cases people beat cancer .when a diagnosis of pd there's now cure just a drug to prolong the affects.
Again, I'm sorry that you lost your father recently to PD. Not an easy journey no matter each person's experience. I appreciate your opinion. I wish too that they would come up with a cure. I pray that this happens in the near future. In the mean time, I wish you all the best. Blessings, Suzanne Troy
