Dizzyness And Embarrassment.
This is my first post after having been diagnosed with “very early” PD about three weeks ago. Thank you for sharing your insights and recommendations.
I wonder if what I’m feeling is normal and if there is a treatment that might help with the problem. Mornings are challenging for me. I feel like I’ve taken a potent narcotic such as morphine or hydrocodone when I haven’t. I’m dizzy, and I have trouble walking and focusing. I feel like sitting back in my recliner, sleeping, and nothing else. After lunch, I begin to feel more normal. I have little stamina, but I feel like getting up and doing a few chores. Do you know of anything that might help me?
My precious wife feels the weight of my illness and limitations. I’m embarrassed and ashamed that I’m not doing my fair share; although she never has a beautiful attitude, she is optimistic and encouraging.
I’ve just been accepted into the Barrows Parkinson’s Disease Center, a nationally recognized center of excellence.
Hi
first of all, welcome to our community! I am really glad you found us and hope to find it a great support. Your wife sounds like an amazing soul and I truly hope you find a way to release the feelings of shame and embarrassment. She loves you and is there for you. Hopefully others in the community will chime in soon with any tips/suggestions. In the meantime, I shared a couple articles for those who have been recently diagnosed - https://parkinsonsdisease.net/living/direction-newly-diagnosed. And https://parkinsonsdisease.net/living/what-to-expect. Have you mentioned to your physician about the dizziness and trouble walking and focusing? If not, I would recommend speaking to them about what you are experiencing. I also shared info on dizziness in PD - https://parkinsonsdisease.net/clinical/dizziness-vertigo. Please know we are here to support you and your wife in any way we can. Reach out anytime. Kindly, Jessica (Team Member) hi I have mobility problems and find it good using a walker with a seat also carry a smelling salt bottle that will help with dizziness
I used to have a colonoscopy every 5 years but since I got PDI haven’t had any I’m afraid to as I am very brittle PD and if I cleared out my bowel I could not be able to recover for a long time and I live alone .
Is their another name for that drug it’s not familiar
Hi
I am not sure what drug you are referring to? Could you share the name and I will do my best to answer your question. Have you spoke with your doctors about what would be the best option for your care and getting colonoscopies? If you haven't already, I would definitely have a conversation with them. Wishing you well. -Jessica (Team Member)
