Looking for insight on DBS
I have been diagnosed with Young onset Parkinson’s March this year. I am having severe side effects from the Levodopa. It gives me severe Dyskinesia to the point where I have trouble doing daily activities normally. We have tried a meditation called Amantadine, that didn’t work. So we lowered my levodopa that didn’t work. Then they raise my levodopa dosage and that didn’t work so now they started me on the extended release Gocovri and guess what? I still have dyskinesia. They said maybe I could do DBS but wow, isn’t that a bit early? That scared me so much. Didn’t expect to have this conversation so early in my diagnosis. Any insight please should this be something I should consider?
About 2 years ago, I received a life-altering diagnosis of Parkinson's Disease. The treatment, primarily Carbadopa-Levadopa however, wasn't effective, leading to a hospitalization. This experience prompted me to seek a second opinion, which revealed a different culprit: Progressive Supranuclear Palsy (PSP). Be sure to get a second opinion. I saw a movement specialist who diagnosed PSP in 20 minutes. See my whole story at https://bit.ly/3TQRHaE
I am grateful for your insight and I am sorry to hear that you have PSP. I am very familiar with PSP my father in law has it and has changed his life so rapidly.
