Anybody Else Out There Like Me?
I'm struggling to connect with PD people who are more like me. I work full time, get plenty of sleep, take a medication once a day with no side effects and it works all day. I live a very normal life. Yes my right side is my problem child, but I can still write, just slowly and I've switched to my left for alot of things. I use a tablet at work for notes, but otherwise I'm fully functional. I exercise daily. Live alone. I've had symptoms for at least 6 years, but was just diagnosed in November. I've had very minimal progression in that time and the medication I'm on has improved much of that. Is there anyone else out there like me?
Hi
, sorry to hear you are having difficulty with connecting to others. Have you considered a local support group? I included a link where you can search in your area, if interested - https://www.parkinson.org/search. I also included a link to our FB page dedicated PD here - https://www.facebook.com/ParkinsonsDiseaseDotNet. You may receive more feedback there. Please know we are here for you any time. Wishing you well. -Jessica, Parkinsonsdisease.net Team Member Hi and thank you. I have found support groups to be very depressing. Every one seems to be falling apart and complaining and that's not me. I wish I could find others who are living a full life.
Greetings! I, too, have the good fortune of being able to conduct a pretty “normal” life despite a PD diagnosis. Sometimes I forget that I even have the disease, but a reminder always eventually comes in the form of some transient symptom like stiffness or lack of energy. My medication works well, and I’ve had hardly any progression of symptoms since my PD was clinically confirmed in January of 2019. It seems there is a very wide spectrum of severity of symptoms across the population of people with Parkinson’s. My theory is that folks with milder symptoms are less vocal and visible in the Parkinson’s community than those for whom the disease has progressed further or more rapidly. I do try to make sure that I’m prepared emotionally, and otherwise, if things start to spiral downward. And in the meantime, I appreciate the level of functionality I’m experiencing now, and I hope it lasts a long time. Just wanted to say “hello,” and I hope the stability of symptomology you’re enjoying lasts forever. Hi! Thank you! It's so good to meet you! I was diagnosed in 11/21, but once she started testing, I realized I've had this since at least 2017, possibly 2016. I just didn't have insurance at the time to get to a doctor. During that interim 2017-2021, I discovered that my symptoms actually improve with simply living stress-free and daily exercise. Mind you I had no diagnosis then nor medication. I went from needing a cart to walk across a parking lot to walking 3 miles a day or 3 flights of stairs 5 times on rainy days. Then 2020-2021 I went through trauma and extreme stress. My symptoms progressed the wrong way. I believe there is much more to this disease then medical science is acknowledging or even addressing. Yes, I appreciate my medication now since my symptoms returned, but I'm also exercising again and am in a better job and much less stress. It's so nice to meet someone else!
