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Latest in the Community

mktbob55 commented a story 43 minutes ago

I hope this account of my story is read as a positive for DBS.

Chris H. commented on the post, Parkinson’s Disease: To Nap or Not to Nap? 1 hour, 20 minutes ago

Thanks for your feedback on this post, @jeffd. I know you’ve stated before elsewhere on the site that you’re an educator. Very interesting to hear you’re involved with sleep research as well. If you’re interested, we’d love to hear more about your PD journey by sharing your story here: https://parkinsonsdisease.net/stories/. Hope to hear from you!…

Twinkle voted in a poll 4 hours, 20 minutes ago

Twinkle commented on the post, Parkinson’s Disease: To Nap or Not to Nap? 4 hours, 21 minutes ago

Hi,
I am having unplanned naps and two days ago I was reading a book drinking my coffee in my reclining chair, when one of these unplanned naps happened! It certainly woke me when I spilled hot coffee on my chest when it tilted and then tilted it the other way when I woke up and tried to straighten the cup up! So it burnt me twice! But I am still…

Dan Glass replied to the topic Tools and Assistive Devices in the forum General Discussions 15 hours, 18 minutes ago

I’m in the early stages (2), so right now, my biggest need is sturdy, but comfortable shoes for my dystonia (clawed up toes). I wear Keen Targhee 2 boots. I have since 2003, and they’ve never given me blisters or discomfort. In sneakers, I feel a lot of pain. I dressier shoes, I’m uncomfortable. That said, I’ve heard other people talk of ankle…

johnb posted an update 18 hours, 24 minutes ago

Good

ReconDoc commented a story 18 hours, 34 minutes ago

Thank you and not a problem Chris.

ReconDoc commented a story 18 hours, 35 minutes ago

A potential nightmare with death, but yet an outstanding account of DBS for those of us who are courting the idea of this treatment.

mktbob55 voted in a poll 19 hours, 15 minutes ago

Chris H. commented a story 19 hours, 35 minutes ago

So sorry, @recondoc! I think I accidentally tagged you in a response to a different story! But thank you for sharing this. It’s great to learn more about your journey, and more about your military service. I’m happy to hear you’re getting the care you need from the VA. And I’m really glad to hear that the chainsaw incident didn’t turn out to be a…

Jeff Dyche commented on the post, Parkinson’s Disease: To Nap or Not to Nap? 19 hours, 36 minutes ago

I suppose I am one of the few Parkies who is also a sleep researcher. I think the advice here is sage in that 30 min naps are very beneficial for anyone but esp those with PD since sleep probs are common. Also keep in mind that the epidemiology study referenced here is correlational so you can’t assume any causation. In other words, napping does n…

Chris H. commented a story 19 hours, 40 minutes ago

Hey @mktbob55 – Appreciate you sharing this story. That definitely sounds like it was a harrowing experience. Can’t imagine what that must’ve felt like. Sounds like you found the silver lining in frightening situation, so that’s a positive! Thanks for sharing more about your journey! – Chris, ParkinsonsDisease.net Team

Stevemy commented on the post, What Parkinson’s Isn’t: 6 Myths Debunked 19 hours, 41 minutes ago

thank you Chris

ReconDoc commented a story 19 hours, 44 minutes ago

Thank you for listening and your great responsiveness from all the staff.

Stevemy commented on the post, What Parkinson’s Isn’t: 6 Myths Debunked 19 hours, 45 minutes ago

I was having some problems with my balance and was falling down quite a bit. After about a week my caregiver made me go to the hospital. It’s a good thing she did it was my blood pressure dropping. Plus I had congestive heart failure

ReconDoc commented on the post, Parkinson’s Disease: To Nap or Not to Nap? 19 hours, 59 minutes ago

I try to avoid day time naps, and am on sleep medication.In 1999, the VA found me 100% Disabled due to Chronic, Severe Post Traumatic Stress Disease due to combat related flashbacks, uncontrolled anger issues, depression and anxiety. Every day is a struggle between conflicting medication.

eurekadan commented on the post, Rigidity and the Writer: A Parkinson’s Tale 20 hours, 2 minutes ago

Still here, still writing… at least when I’m not crazy busy with pre-semester advising! Take care and enjoy your summer!