Community

Gabro13 commented on the post, 10 Things That Your Doctor May Not Have Shared with You About Parkinson’s Disease 1 day ago

I really enjoyed your article. It reaffirmed to me that I am on the right and positive path to dealing with PD. I have always been very active with exercise. Running, walking , yoga and Rock Steady Boxing. Lately I decided to ride my bicycle more often depending on weather. I never realized how the bike allowed me to feel like there is no…

coldr posted a new activity comment 1 day, 13 hours ago

peachy indeed

coldr posted an update 1 day, 13 hours ago

I am peachy.

KellyW voted in a poll 1 day, 18 hours ago

KellyW commented on the post, Using Radical Acceptance to Cope with Parkinson’s Disease 1 day, 18 hours ago

Thank you Brooke for writing such an informative article. I have been fortunate to have been through DBT therapy and found radical acceptance to be very helpful.
Kelly, ParkinsonsDisease.net Team Member

karl.robb wrote a new article 1 day, 19 hours ago

10 Things That Your Doctor May Not Have Shared with You About Parkinson’s Disease

These 10 suggestions are just that—suggestions for what I have found to work for myself. I encourage you to find …

debbies1 commented on the post, Five Helpful Tips for Caregivers 2 days, 17 hours ago

How was your experience w/ the DBS procedure? We want my husband to have that done. He’s had his PD about 3yrs. Gets more freezing and tremor episodes now but he does stay active

Brooke Huminski wrote a new article 2 days, 18 hours ago

Using Radical Acceptance to Cope with Parkinson’s Disease

Receiving a new diagnosis of Parkinson’s disease can be both validating and scary. It is common for questions …

Michael Church commented on the post, New Technology Lets Physicians and Families Feel Your Tremor 3 days, 7 hours ago

Great article for those family and friends who are still in disbelief about PD and a great tool for doctors and clinicians too who need precise, up-to-date measurements of movement disorders. I love this out of box thinking by PD researchers.

Cstraub58 answered a question 3 days, 8 hours ago

My tremor has been minimal while I have been consistent with my medication. However, body movements are constant. If I am sitting still, something is moving, my feet, my fingers, etc. But it is not the same for everyone. I look at the other people in the waiting room at the neurologist’s office, and no two people are experiencing the same thing.

Cstraub58 voted in a poll 3 days, 8 hours ago

Editorial Team wrote a new article 3 days, 12 hours ago

Take the Clinical Trial Patient Experience Survey!

Have you participated in a clinical trial? We want to hear more about your experience! We are conducting a …

1624fitz voted in a poll 3 days, 13 hours ago

Editorial Team wrote a new article 3 days, 16 hours ago

The Emotional Toll of Chronic Illness

Trigger Warning The content includes information related to mental and emotional distress and it might be upsetting to some …

doreen.hribar answered a question 3 days, 17 hours ago

Thank you so much for sharing your story with us. The love you have for your parents is incredible. They are both so fortunate to have you living with them and helping out as much as you do. I’m sorry to hear of your Mom’s recent decline and perhaps the toll it’s taking on your Dad (and you as well). Your suggestions on trying support groups and a…

Tonya Walker wrote a new article 4 days, 9 hours ago

Chris H. posted a new activity comment 4 days, 14 hours ago

Hi, @barbfl – I’m so sorry to hear how difficult it’s been with your husband. Standing by while someone refuses to help himself can be incredibly frustrating. I wanted to share with you some ideas on caregiving when someone refuses care with this article. I hope this helps give you some guidelines on how to approach it. Please keep us updated!…

doreen.hribar posted a new activity comment 4 days, 14 hours ago

I am so very sorry to hear you are going through this. It must be so difficult for you. It sounds like your husband has never come to terms with his PD diagnosis. However, it could be the PD and not him personally that is reacting this way. If you haven’t yet, it may be helpful to find a support group in your area for him and even a Caregiver’s…

Editorial Team wrote a new article 4 days, 15 hours ago

New Look, Same Great Community!

You might notice a few changes in the way things look when you visit our site. Never fear! You still …

barbfl posted an update 4 days, 18 hours ago

can think of. I am living with a body, i see a psychologist, they tell me to prepare for the future. What furure