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I thank you for bravely sharing this story with all of us. It was very well stated and powerfully moving.
Please take care in all you do.
The world is ours to travel, experience, and breathe in. I’m glad you’re still out and about, too. These last few years and next ones will be busy for my wife and me, too.
I love your attitude toward the memory making!
Keep seeing the world, and pay the staring hordes no mind.
Love and adventure go a long way. I’m glad you have an excellent team to make you feel safe in these difficult times.
I hear you on your frustration, confusion, and changed priorities. That said, I’m glad life gives you outlets, as it has, to stay as active as possible. PD isn’t easy, nor are decisions like DBS, so talk to your doctors, husband, and loved ones to get their support. Whatever way you choose to go, I wish you well in life.
I do the once a month massage… wish I could do once a week. They make a difference since I feel dystonia, twisting at my limbs, too.
I wish you well on this vote. I spent Dec27, 1990, – July8, 1996, in England (Bury St. Edmunds was the final part after Lakenheath and Bentwaters). Hopefully, Britain can influence American voters with a positive solution. We could both use some sanity in office.
Over the course of a year, my symptoms have gotten a little worst. Two of them are my calf leg cramp and toes that clamped downward, both on my left leg. Then my wife offered to rub out my leg and foot.
I was […]
Thanks for your response. I. Hope to learn a lot from this site.
I have had PD for three years, so far I don’t feel like the medicine makes a huge difference, but I keep taking it. I found that Pramixpexole works best for me (such as it is). The MJFox Foundation stated that have identified a molecule that may arrest the symptoms, but it’s owned by Big Pharma. The foundation has to develop another version of it…
I am newly diagnosed (yesterday) and trying to learn as. Much as I can.
Thanks for sharing @stella. April – Parkinsonsdisease.net Team
I’m so glad you enjoyed the article @ajlamb. I completely understand not wanting to use needed energy trying to explain things. Thank you for sharing your thoughts. April – Parkinsonsdisease.net Team
I have never really felt the “off” periods only because I have also never really felt my “on” periods. Medication has not worked for me very well at all. So i continue to stumble along trying not to fall. I dont really tell many friends about the truth about my condition but rather just say I am doing “fine” on my better days and “OK” on my not so…
Not too bad
My choice used most frequently
“up and down”
Keeps things easy.