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I hope this account of my story is read as a positive for DBS.
Thanks for your feedback on this post, @jeffd. I know you’ve stated before elsewhere on the site that you’re an educator. Very interesting to hear you’re involved with sleep research as well. If you’re interested, we’d love to hear more about your PD journey by sharing your story here: https://parkinsonsdisease.net/stories/. Hope to hear from you!…
I am having unplanned naps and two days ago I was reading a book drinking my coffee in my reclining chair, when one of these unplanned naps happened! It certainly woke me when I spilled hot coffee on my chest when it tilted and then tilted it the other way when I woke up and tried to straighten the cup up! So it burnt me twice! But I am still…
I’m in the early stages (2), so right now, my biggest need is sturdy, but comfortable shoes for my dystonia (clawed up toes). I wear Keen Targhee 2 boots. I have since 2003, and they’ve never given me blisters or discomfort. In sneakers, I feel a lot of pain. I dressier shoes, I’m uncomfortable. That said, I’ve heard other people talk of ankle…
Thank you and not a problem Chris.
A potential nightmare with death, but yet an outstanding account of DBS for those of us who are courting the idea of this treatment.
So sorry, @recondoc! I think I accidentally tagged you in a response to a different story! But thank you for sharing this. It’s great to learn more about your journey, and more about your military service. I’m happy to hear you’re getting the care you need from the VA. And I’m really glad to hear that the chainsaw incident didn’t turn out to be a…
I suppose I am one of the few Parkies who is also a sleep researcher. I think the advice here is sage in that 30 min naps are very beneficial for anyone but esp those with PD since sleep probs are common. Also keep in mind that the epidemiology study referenced here is correlational so you can’t assume any causation. In other words, napping does n…
Hey @mktbob55 – Appreciate you sharing this story. That definitely sounds like it was a harrowing experience. Can’t imagine what that must’ve felt like. Sounds like you found the silver lining in frightening situation, so that’s a positive! Thanks for sharing more about your journey! – Chris, ParkinsonsDisease.net Team
thank you Chris
Thank you for listening and your great responsiveness from all the staff.
I was having some problems with my balance and was falling down quite a bit. After about a week my caregiver made me go to the hospital. It’s a good thing she did it was my blood pressure dropping. Plus I had congestive heart failure
I try to avoid day time naps, and am on sleep medication.In 1999, the VA found me 100% Disabled due to Chronic, Severe Post Traumatic Stress Disease due to combat related flashbacks, uncontrolled anger issues, depression and anxiety. Every day is a struggle between conflicting medication.
Still here, still writing… at least when I’m not crazy busy with pre-semester advising! Take care and enjoy your summer!
Dan – haven’t heard from you in awhile. Glad you’re back to occasionally share your story.