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Young onset

  • By KellyW Moderator

    Hi Tony. Yes, I am also a “young onsetter”. I was diagnosed at 29, now 45. There are a few of us here. How were you diagnosed? What were your first symptoms?

    Regards, Kelly, ParkinsonsDisease.net Team Member

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  • By Gretchen Church

    Hi Tony,
    I am also a young onsetter. I was diagnosed at 32 now 52. I met and married another Parky who was diagnosed at 32 now 55. There are actually quite a few of us out here in the nooks and crannies of world. A lot more I am afraid than I would like. The non motor symptoms were a pain for me early on to really understand 20 years ago. We have come a long way in at least being able to realize that they exist and identy them. My husband started with pinky tremors. Do you find that stress makes them worse?

    parkinsonsdisease.net is a a great community to have landed!

    Blessings, Gretchen, ParkinsonsDisease.Net Team Member

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  • By BakerandShaker

    Hi Tony! I’m a young-onsetter as well. Symptoms started at 36 but I wasn’t officially diagnosed until 2008 after having an MRI to rule out MS. I was 40 then. I am now 49. My brothers, who are twins, also have PD. I just found out 2 years ago that my Dad’s cousins (3 out of 6) had PD. I always thought the cause was working in a greenhouse around herbicides when I was 12-13 years old, or the well water I started drinking when we moved to a farm when I was 10 years old. Guess I now know it’s genetic!

    I have had no luck trying to find young-onset support in my area (Raleigh, NC). They’re all PD groups that meet at nursing homes. I thought about starting a group, but hey, the fatigue with PD can be an obstacle to motivation and energy.

    I’m glad I’m getting to meet other young-onsetters through this forum.

    Best to all.

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