Side effects from Medications

I've had Parkinson's for 5 yrs and since going to this Neuro and all the changes the side effects of meds has gotten worse. My "story" is not for the purpose of criticising the Neurologist although I have been advised to get a new set of eyes as I feel I'm fighting a battle alone, hence getting more and more despondent.

It would be much too long to explain all but as this topic is on side effects of meds I will try and be as short as possible, I'm very detailed so I'll try. I am on the following meds: Sinemet CR, Carbilev, Pexola and Azilect and Celebrex when necessary. There have been changes from time to time from Modepar to Sinemet then from Sinemet to Sinem, CR and then added Carbilev also Lasix (diuretics), as I was having problems with my BP, I had been on CoPritor for many years from my GP with no problems until I went on these meds.

Medication side effects

The Neuro took me off my BP tabs as it was dangerously high then dropped to extremely low, I thought I was going to die. 90/45. I don't think he knows what to do. Anyway he said to cut out the Carbilev and monitor myself also my bp. I only see him every 6 months, difficult to talk on the phone. I'm feeling awful, the side effects, which I have googled but difficult as they have same effects for all of them, so confusing. I actually feel like I'm on another planet, lethargic, dizzy, dry mouth which is terrible, I'm not talking about an ordinary dry mouth but to the extent that my tongue sticks to the roof of my mouth and is actually sore, I can't talk properly. I'm sure my friends think I'm drinking on the quiet, after that passes I get abnormality tired, and thirsty saliva starts more than usual, like it's trying to substitute the loss, he told me to chew gum, it comes on usually going on to my 3rd dose. I take them 4 x day 7.30, 11.30, 15.30 and 19.30.

My ankles are swollen, some days more than others, he recently did a blood test for kidneys but was fine. This has only started since I've been these meds. My husband keeps a daily log book, always has, and he's been writing everything down since day one. The Parkinson's is on my right side. I have absolutely no quality of life! I don't tremor yet but the immobility is at times so frustrating! The interesting thing is when I get that dry terribly dry mouth, and that high feeling, usually an hour before my next dose is due, my mobility gets better and I can crochet. When I feel really awful I can't crochet. A little test I do.

I am on Nexian, a sleeping pill, Zopimed and Symbicord 2 puffs a day from my GP, been on for years. Its controlled. There is much more but it would be a book. I could never take diet pills or anti depressants (which I don't like anyway) had almost the same feeling, not as bad. He wanted to put me on anti depressants and I refused, maybe later, I couldn't handle another pill, I couldn't cope. I'm becoming more and more reclusive and it's not depression, it's not feeling up to it. I also talk too much, if you could call that a side effect.

Still fighting

I have bad knees from sport and age now, ortho arthritis. All my joints are sore now. Please don't give up on me. Hope this helps someone out there even if I'm a lost cause. I can hardly walk when I get up in the morning for about an hour guess I can blame a lot on the meds which I do but also age. From being a healthy person and I trained, to this. I realise it's a degenerative disease and I have accepted it, still fighting, tried to exercise but too painful now. To get off a chair is a problem, that's age.

All the best to you all and pray we can keep up, one day at a time. I am going to try and get some quality of life. Maybe someone has the key. Even a small one to keep going. It's the mind to get right. Sorry so long. God bless you