Newly Diagnosed

Diagnosed last October after almost a year of many, many specialists telling me they had no idea what was wrong. My symptoms were all non-motor, insomnia, leg pain that will not go away, and anxiety issues. Had a DAT scan and that was the test that verified PD.

Started on Requip, had such bad fatigue that I had to quit that and then started on Sinemet, up to 6 a day with a time release one at bed time. Been on Sinemet since early January.

Still have major fatigue, insomnia is a little better, leg pain will not go away. Having a real difficult time accepting my diagnosis. I do go to 4 PD exercise classes a week. Try to walk 4 miles a day. I am 64, was diagnosed at 63. Will this brain fog and fatigue ever go away?

First post on a community bulletin board, thanks for listening.

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Comments

View Comments (6)
  • Sharilogan
    9 months ago

    I can definitely relate. I’ve been trying so hard to get doctor after doctor to please take me serious. Finally last month I was referred to a neurologist. I have my next appointment next week. I just want to put a name to what is happening to me. Wishing you good luck.

  • chris.hall moderator
    9 months ago

    Glad you got the referral you needed! Keep us posted @sharilogan after your appointment! – Chris, ParkinsonsDisease.net Team

  • Sharilogan
    9 months ago

    Thank you Chris and I will

  • Christi
    11 months ago

    Hi. Iwas told of my diagnosis in 2015 when I needed a DBS. I was told that I had PD since I was 41. I am 50 now. I have had fatigue and brain fog for many years. It has gotten so that I get my kids off to school and take a nap. Speaking and writing are fun. I forget everything. I am new here too. I just now joined in fact. I hope all here are honest and don’t hold back on symptoms of this disease.

  • Sharilogan
    9 months ago

    It must be hard dealing with pd and raising children at the same time. I think that’s awesome.

  • chris.hall moderator
    1 year ago

    Hi, @dt – we’re so glad you joined us here. Welcome! We commend you on making your first post in the community. Many folks in the community have shared similar experiences regarding very long diagnosis journeys. It’s frustrating to not get the answers you need! Accepting a PD diagnosis can definitely be hard, so I hope this article helps you: https://parkinsonsdisease.net/living/direction-newly-diagnosed/. Since you mentioned the fatigue you’ve been feeling, I thought I’d share a conversation going on in our forums about it here: https://parkinsonsdisease.net/topic/extreme-fatigue/. I’m thrilled to hear that you’re staying active – keep it up! Please come back anytime you need support or want to share. Thanks again for sharing your story! – Chris, ParkinsonsDisease.net Team Member

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