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Never Woulda Guessed

I am 64 and just retired from teaching second grade. Whew! I was diagnosed with PD about 5 years ago although I had symptoms a few years before. I went in because I had slight tremors in my left arm and hand, my left arm did not swing naturally when I walked, and there was some rigidity in my left arm, AND, I couldn’t sing any more (I was a musician and performer and used to sing in the Mormon Tabernacle Choir and made some recordings. Now I can only sing about one octave…a great loss.) When I went to see the doctor (neurologist) all he did was ask me to walk up and down the hall while he watched. He asked me a few questions and then just simply said, “You have Parkinson’s.” Boom. No blood test, no studies, no nothing. There it was. I remember as a child seeing people with severe tremors and when I was old enough to understand it was Parkinson’s I said to myself, “I would rather have any disease but that!”

Well, here I am. Luckily, thankfully, gratefully, I am still highly functional. My tremors are getting a little worse but they are only on my left side (I am right handed). I still play the piano, still move freely, still sing (to myself) and (here is my testimony) I go to Rock Steady boxing when I can (about 4 times a week). It has saved me emotionally, physically, and socially. A tremendously supportive, relaxed, encouraging, positive group of people. It’s hard work but we go at our own pace, do what we can, encourage each other, laugh and joke around and always celebrate our victories at the end of a session. I just had surgery on my foot (arthritis). I am in a cast and I still go twice a week. I sit on my knee scooter in front of a bag and punch, punch, punch. I do what I can. Please find a Rock Steady program near you. Exercise is the only thing that will stop the progression of PD. I cannot afford not to do it.

This is my story.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The ParkinsonsDisease.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • 3bob6
    5 months ago

    What a great attitude. I was diagnosed 2 years ago and still function well. I heard that boxing helped and during my research on boxing came across Rock Steady. I try to do three times each week and find it to be a great program. I don’t know how I would get along now without it. It has become that important to me. I have promised my loved ones that I will do whatever I can to slow the progression and RS is part of that promise.

  • ParkinSunshine
    12 months ago

    thanks Eurekadan for your positive message. And I will !!!

  • Dan Glass
    12 months ago

    Never stop believing in the good things to come and keep beating up on those punching bags. Movement of body and mind is key!

  • Chris H. moderator
    1 year ago

    So great to learn more about you, @dulcimur! Congratulations on your retirement. I’m sure those second graders kept you on your toes! I’m so surprised on how matter-of-fact your diagnosis was. That’s not always the case, as we’ve heard from many others in this community. I’m so glad to hear that you’re still able to play and sing music. Rock Steady Boxing has been raved about by many here, so it’s great that it’s been helping you so much. I wish you a speedy recovery from your surgery! Thanks so much for sharing. Take care! – Chris, ParkinsonsDisease.net Team

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