Never thought this could be me

I am not sure I belong to this group. I have a couple of symptoms. When I told the doctor that I had trouble writing, he gave me a quick neurological exam. He said I had tremors in both hands and fingers. He mentioned the possibility of PD.

He said that it could be from Gabapentin which I take for neuropathy. I really need the Gabapentin but he said I might have to stop taking it as it can cause tremors and micrographia.

I lose either way. Either I have this or I don’t have it but won’t be able to get any help for the neuropathy.

I know a lot of people have it worse. Whatever each of us is facing or dealing with, I think we can help one another with encouragement and inspiration.

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Comments

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  • donna.miller moderator
    2 years ago

    Hello – I read your story and wondered if you’re seeing a neurologist who specializes in Movement Disorders? The abbreviation you’ll see online for neurologists who have specialized in movement disorders is MDS for “Movement Disorder Specialist.” I am not trying to convince you to change neurologists! But if your doctor is not an MDS, maybe you could ask him to refer you to an MDS for a second opinion. Or, you can find MDS in your area at a site run by the Michael J. Fox Foundation. As part of the Partners in Parkinson’s project, the site where you can go to is” : https://www.partnersinparkinsons.org/find-movement-disorder-specialist#

    I’d also encourage you to read a paper published by the national PDF organization: Seeking Out A Parkinson’s Specialist The link to this article is: http://www.pdf.org/seeking_specialist_parkinson

    I hope this will help you be treated for both conditions if you do have Parkinson’s Disease. Best wishes on finding a solution to your problem. Donna, ParkinsonsDisease.net Team Member

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  • chris.hall moderator
    2 years ago

    Hi akalinus,

    You’re absolutely welcome in this community! I’m sorry to hear about the tremors and micrographia you’ve been experiencing. I really hope you get some clearer results soon. Do you and your doctor have next steps planned to help make a determination? In the meantime, please feel free to share with us anytime! Your comment about encouragement and inspiration is exactly the attitude we want to foster in this community. Thank you so much for sharing your story!

    Take care,
    Chris, ParkinsonsDisease.net Team Member

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