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Learning to live with Parkinson’s

I was always an active person, raising 6 kids and participating in their lives. Now, one of my daughters lives near us, and has become a co-caregiver along with my husband. I was the one who was supposed to help her with her son. Never thought I would be in this situation!

Staying motivated

Miss the ability to do things on my own, drive to the store, cook, go for a 2 mile walk! I feel diminished! I stay active in a way by doing crafts. It gives me motivation to keep going, and I give away the things I make. That people like my crafts gives me pleasure. Does anyone else have something like this to keep them feel better?

More traveling

I have also been dealing with terrible back pain, and have recently had Spinal Cord Stimulation device implanted. I’m hoping that will improve my ability to walk better. My husband and I would like to travel a little more if I improve! Well, that’s my story in a nutshell!

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  • Dan Glass moderator
    1 month ago

    I’m glad to hear that you’re still creating. We talk a lot about exercise being important – and it is – but using our minds to create is also essential.

    Keep those crafts coming!

    I wish you well in your journeys with Parkinson’s and hope you find some journeys to travel.

  • Jessica.Hall moderator
    1 month ago

    Hi @jmpap, thank you so much for taking the time to share part of your story with us. I love crafting as well, especially this time of year. Working on any particularly fun projects recently? Wishing you a speedy recovery from your recent procedure! Hugs, Jessica- Team Member

  • Jmpap author
    1 month ago

    Hi, I forgot to send the message I typed! So, I’ll make this shorter! I guess I can thank Parkinson’s for making me realise I had some talent and getting me started on crafts! I mostly decopodge or paint vases and wine bottles. It’s a great day when I can get more than 1 or 2 done. I give things away to neighbours and friends. I make things for my Daughter to give to her student helpers and kids on her Reading Olympics team. Also gifts for Drs. and their staff! What’s your crafts story? You must admit that they keep you busy and give you purpose! Would love to hear from you again and about your journey! Jmpap

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