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CO poisoning

I have been living with severe Parkinson’s syndrome for thirty years. When I was 18, depression left me with the feeling that there was no other way out but suicide. Following the poisoning, I was incompletely rehabilitated at the nearest hospital with a hyperbaric chamber. I gradually improved to the point where I was able to complete my college coursework actually walking around the large urban campus of UW-Milwaukee. This may not sound like a tremendous feat, but where I had come from…monumental!

From then until now, however, I have fallen. Not just literally, hundreds of times, but also as in “Oh how the mighty have fallen!” I now get around the house on my hands and knees. I am not strong enough to manipulate a wheelchair. But, miraculously, I still can take care of myself for the most part. I mean, I don’t cook; that would not be safe. I could wash my clothes, but I don’t have to. And I don’t shop for groceries. All other self care I am still able to handle. A strong spirit, I suppose. I am ready to go, as soon as the Good Lord says so, though. My, I am so tired. Unless someone comes up with a cure for this horrible thing that has taken the best years of my life, I am ready to give up the ghost!

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The ParkinsonsDisease.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Chris H. moderator
    4 months ago

    Hi, @Jdroli1070 – Thanks so much for your willingness to share here. Dealing with Parkinson’s syndrome for 30 years on top of the CO poisoning sounds incredibly difficult. It sounds like things are manageable on your own, but still challenging. In case you need assistance with finding outside help, we do have this article that contains different resources for that here: https://parkinsonsdisease.net/answers/finding-a-caregiver/. This community knows how hard the journey is with Parkinson’s, so please know you’re not alone in this.

    In addition to the online support you can find here, we also encourage you to reach out for in-person support through your doctor, counseling, or support groups. The Parkinson’s Foundation has a helpline staffed with counselors and social workers, which you can find here: https://parkinson.org/Living-with-Parkinsons/Resources-and-Support/Helpline. If these thoughts are becoming too much to bare, there is help available 24/7 through the National Suicide Prevention Lifeline at 1-800-273-8255. I hope this information helps. Thank you again for sharing your personal story with us. This community is here for you. – Chris, ParkinsonsDisease.net Team

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