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Christi’s Story

I was at my first pain doctor visit. He came in and asked if I had PD cause I had the mask. I asked my neurologist and he said no. I continued seeing him for seizures. I continued with the shaking but it got so bad that my entire body was shaking. The doctor filmed me and said I had PD since I was 41. That is how I learned about having PD. I asked the doctor what stage of PD I was in and he said 3.5. I have no idea what that means. I had a DBS implanted in 2015 and I fell hitting my head. I don’t remember anything for about 7 or 8 months. I spent time in hospitals and rehab centers. Has anyone experienced this? I heard there was a class action suite on the people who made the DBS but I have no idea why.

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  • KellyW moderator
    2 years ago

    Hi Christi and avonladydc. Mask-like facial expressions are very common in Parkinson’s disease. Here is some information Also, here is an article that explains the stages of PD. I hope these help! Please send another note if you need more information. Regards, Kelly, Team Member

  • avonladydc
    2 years ago

    Hi Christi! Did your doctor ever explain what the mask was? I’ve never heard of it before

  • Christi author
    2 years ago

    He said it was a mask because it showed no emotion. Even if you felt happy and smiling your face was still the same.

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