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Be Careful of What You Ask For

While the Title leads you to negative thoughts, in reality it was just the opposite. I had asked to be seen by a full fledged Neurologist, not a student from University of Alabama at Birmingham (UAB). I was tired of being seen by 4 different students in as many visits. Only the basic exam of walk, close your eyes, etc, type of exam; and willingly to prescribe any medication they were allowed to. In my request, I identified this as “not the community standards of care” or “continuity of care”. I got what I asked for and a whole lot more.

Full exam

After spending one and one-half hours with Dr. T, who examined me from head to toe, listened to my concerns and addressed each one of them, I came away from that visit 1) with a f/u in 4 months with Dr. T; 2) an additional medication Amantadine 100mg daily for a month, then two times a day to help with my dyskinesia, discontinued my Gabapentin and added Lyrica 50mg three times a day; 3) Scheduled for an MRI of my neck (which is fused from C4 to T1 with an anterior plate and screws) to see if some of my symptoms could be arising from my neck again; 4) Referral to a specialist in Deep Brain Stimulus to see if I was qualified for it; and an 5) Occupational Therapy referral.

I cannot explain my feeling as if I was his only patient. I was astounded to say the least. I only wish my Veteran Brother’s could fare so well in dealing with the Veterans Administration. I am eagerly awaiting my new medication (it is mailed to me) to see if it will help me. I am not keen on brain surgery, but I will hear what the doctor has to say. My scariest concern now is I may require another neck surgery (already have had four).

The lesson is…

The lesson is: Be Careful of What You Ask For, or Now that I have it, What will I do with It?

I really enjoy this forum Even if this doesn’t get “published”, it has given me the opportunity to look at all of this from a different perspective, has let me vent, and hopefully may help some one else who was like me and afraid to ask.

Thank You

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The ParkinsonsDisease.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Chris H. moderator
    2 months ago

    @recondoc – As Sharon said, thank you for sharing your experience! Just wanted to point out that this story is actually published, and is on the site with the rest of users’ stories here: https://parkinsonsdisease.net/stories/. Thanks again! – Chris, ParkinsonsDisease.net Team

  • Sharon Krischer moderator
    2 months ago

    ReconDoc: thank you for sharing your experiences with your doctors (and students). Med students are great, they need to learn, but not if there is no one in the exam supervising them. Someone (a supervising MD) needs to take the time to look at what the students have done with you and make sure that you are getting the best care that you can get. And not just on an annual basis. This should be done at every visit. Too often, patients are afraid to say anything. Although you were not happy with the final recommendations, earlier intervention by a supervising Neurologist may have helped treat some of your issues sooner. I hope that others read your post and become more pro-active about their care. Wishing you the best. Sharon, Parkinsonsdisease.net team

  • ReconDoc author
    2 months ago

    Thank you Chris. It is great to be part of the team, not looking from the outside in.
    Thank you Sharon. You are right about med students, but if you rock the boat your in, they may throw you overboard. That is why I waited, not scared, but concerned over how to address my concerns.
    when I as was put on 400mg of Gabapentin and I started hallucinating, became ugly to all around me, my lady Deb said enough. Took the medication away from me (I had only taken it for four days) and I became “normal” again I wrote the Neurology Department with my request and and there was no negativity from anyone about what I had written, I was relieved.
    I love this forum and have enjoyed reading other stories and it is easy to learn from “others” like me. Thank you for allowing me to be part of this.

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