Loving the Man – Not Loving Parkinson’s...The way that my husband Karl and I met was unconventional. It was 1995 and the Internet was just starting to make strides into people’s homes. We met on a...Reactions0reactionsComments9 comments
How We Cope – Being Care Partners for Each Other...Angela and I have been married for over 21 years. We consider our marriage to be a relationship of mutual care. We prefer the term “care partner” instead of “caregiver”...Reactions0reactionsComments0 comments
Are Tremors a True Sign or Symptom of Parkinson's?...I am in denial of having Parkinson disease because I have no tremors. Is this a true sign or symptom of Parkinson's, even though I have severe rigidity of my...Reactions0reactionsComments4 replies
Jerking Motion in Eyes Before Losing Balance with Parkinson's...Does anyone else have a jerking motion in the eyeballs prior to losing balance and falling?...Reactions0reactionsComments3 replies
Speaking in "Parki-nese": Challenges with Speech...What if you woke up tomorrow morning and couldn’t speak? How would it affect your life? Think about it. You couldn’t tell your family good morning, cell phones would be...Reactions0reactionsComments17 comments
Parkinson's Diagnosis...I retired in May 2017 after 35 years as a staff nurse and in June 3 weeks after I was given the diagnosis of Parkinson's. Still struggling to accept it...Reactions0reactionsComments1 comments
PD Pundit: REM Sleep Disturbances...To read the rest of the "PD Pundit" series, click here....Reactions0reactionsComments1 comments
Rock Steady Boxing: An Exercise Class to Manage PD Symptoms...The benefits of exercise have been touted as essential to a healthy lifestyle for decades. Running, cross training, yoga, and Pilates have all had their time on the front pages...Reactions0reactionsComments7 comments
Sarah Hackley...Sarah was previously an advocate on ParkinsonsDisease.net. Sarah Hackley is the author of "Preparing to Fly: Financial Freedom from Domestic Abuse," "Finding Happiness with Migraines: A Do-It-Yourself Guide," and the poetry...
Doctors vs. Patients...Doctors vs. patients? It seems like a contradiction, but in far too many cases, that is exactly the scenario described. Doctors, more specifically, neurologists because we are talking here about...Reactions0reactionsComments0 comments
Late Stage PD: 10 Questions to Ask Your Doctor About Cognitive Issues...Cognition in Parkinson’s disease (PD) is generally categorized into 3 stages: early, moderate, and late. Not everyone with PD will experience this change in mental processing, but for those who...Reactions0reactionsComments4 comments
Anyone Have Experience with Coffee Enemas and Parkinson's?...My apologies for such a sensitive subject....Reactions0reactionsComments4 replies
The Future of Parkinson's in the Palm of Your Hands...After seeing, caring, and treating strangers, patients, and loved ones with devastating brain illnesses such as Parkinson’s, I felt compelled to help in whatever way possible to advance the knowledge...Reactions0reactionsComments0 comments
Any Positive Experiences of Being a Musician with YOPD? ...Any stories/examples/insights in to carrying on playing with PD. I am 38 musician pianist diagnosed last year; don't know what to expect. My eyes are wide open but respectfully please...Reactions0reactionsComments2 replies
How to Make the Most of Your Doctor's Visit...There are many useful tips that you can utilize before, during and after your appointment with the neurologist to make every minute count. Here are just a few to help...Reactions0reactionsComments1 comments
Stumbling On Information I Needed...When I was first diagnosed with PD, it was like being hit by a truck. There was so much information in books and on the internet, but what did I...Reactions0reactionsComments3 comments
Tonya Walker...Tonya was previously an advocate on ParkinsonsDisease.net. Tonya began experiencing Parkinson’s symptoms in 2006 at the age of 32. Two years later she was diagnosed with Young Onset Parkinson’s disease...
What is “Reiki” therapy?...I was diagnosed about a year ago and I went about taking my meds and thinking I could beat/control this Parkinson’s disease as I have everything else in my life...Reactions0reactionsComments3 replies