Considering the Emotional Toll of Parkinson's Disease...It was a Tuesday morning mid-winter and the snow was already falling. The forecast told for a blizzard and already the hospital discharges for the day were being delayed by...reactions58comments
How are the Terms Care Partner and Caregiver Different?...It is common to find the use of these two terms within the Parkinson’s disease community. However, they are rarely defined. It occurred to me to take time to show...reactionscomments
HOPE for Parkinson’s Disease...I am an advocate of hope! How can you have hope you ask when your doctor tells you, that you have a chronic, neurological illness called Parkinson’s disease (PD). Oh...reactionscomments
The Clinical Trial Consent Form: Understanding Your Rights & Responsibilities...Informed consent is the term that signifies a person has been given information regarding all possible consequences for a treatment, including both potential risks and benefits. While informed consent frequently...reactionscomments
Do prescriptions like Nortriptyline and Gabapentin help reduce pain in PD?...I have taken both of these medicines and I am not sure they help resolve the pain problem. Currently taking Nortriptyline 20 mg/day, have taken Gabapentin 300mg/day....reactions1reply
What's the difference between Parkinson's and Sjogren's pain?...I was diagnosed with Sjogren's including fibromyalgia twenty years before I was diagnosed with Parkinson's. It hard for me to differentiate between the two many times. Especially when it comes...reactions1reply
The Power of Your Personal Story...Over eighteen years ago, I attended my first Parkinson’s Action Network (PAN) forum in Washington, DC and I became an advocate for Parkinson’s disease (PD). The PAN forum brought together...reactions1comment
The New Normal Pt. 2...Read part one of this story here. From the initial discussions with friends and family to the first night of new classes when I tell people "you may see this...reactions2comments
The New Normal Pt. 1...Sitting in the doctor’s office, everything was relatively quiet in the sanitized hospital-ness of the examination room. There were no pretty pictures to look at; instead, there were only cabinets...reactions1comment
“But You Don’t Look Sick?”...Occasionally I am surprised when I meet someone new and explain that I have Parkinson’s disease and they will say, “But you don’t look sick?”. I never really know how...reactionscomments
Will Medicare pay for the dermatologist?...With an increased risk of melanoma for persons living with PD, will Medicare pay for examinations and required tests by a dermatologist?...reactions1reply
First Medication Approved to Treat Dyskinesia in Parkinson's Disease...The U.S. Food and Drug Administration (FDA) approved Gocovri™ (amantadine) as the first treatment for dyskinesia in people with Parkinson’s disease (PD) who are receiving levodopa therapy with or without...reactionscomments
Pain Awareness Month...Pain can be a huge struggle for those with Parkinson's disease. We want to hear from you about the ways you experience and manage pain. Join the conversation!...reactions1reply
30 Questions Everyone with Parkinson's Should Ask Themselves...Being diagnosed with Parkinson’s disease at age 32 has made me reevaluate my existence. I don’t think that I’m alone here either - many of us Parkies have faced this...reactions3comments
My Advice For Someone Considering Occupational Therapy: It Can Help!...I wanted to share the details of what is sure to be less of a scandal (more informational) about what occupational therapy can actually do for you. According to Wikipedia...reactionscomments
A Surprising Relationship: Parkinson’s Disease & Melanoma...Melanoma is a type of skin cancer that develops from melanocytes, and Parkinson’s disease (PD) is a progressive movement disorder that affects the nervous system… But did you know that...reactionscomments
What Parkinson's Isn't: 6 Myths Debunked...What is Parkinson’s disease (PD)? This is a question many of us have asked our neurologists, but the answers can be confusing. This is because we are still learning about...reactions42comments
Maia and Me Living with PD (Pt. 3)...Click here to read part one and here for part two of "Maia and Me Living with PD". Maia dog is not a pet, nor cared for as a house...reactions1comment
Maia and Me Living with PD (Pt. 2)...Click here to read part one of "Maia and Me Living with PD". Choosing a dog requires careful consideration to make sure you and your future canine companion can meet...reactions1comment
Maia and Me Living with PD (Pt. 1)...Lots of folks are asking me about my Parkinson’s Medical Service Dogs. Please read through this whole series to get a firm idea as to what it is to own...reactions6comments
