A Parkinson’s diagnosis is a shock, but what can make it more difficult is the lack of information available for patients and their loved ones. Many people quickly jump online to research the ins and outs of Parkinson’s but have trouble finding helpful information that can tell them what to expect. Even more difficult can be finding someone who actually lives with Parkinson’s to connect with and share experiences.
How can a survey help?
The Parkinson’s Disease In America survey is an annual survey on ParkinsonsDisease.net that seeks to close some of these gaps. The survey covers “basics” like diagnosis and treatment experiences, but also dives into the nitty-gritty, like the emotional impact and the seemingly ‘small’ day-to-day challenges.
Each person that takes the survey contributes to a better understanding of Parkinson’s and can help others who are going through it feel less alone. Sharing experiences in the survey can reveal how similar each person’s journey with Parkinson’s can be, as well as the differences that make each journey unique.
What happens after I take the survey?
After the survey closes each year, the Editorial Team at ParkinsonsDisease.net takes your responses and creates an infographic filled with information about life with Parkinson’s. But that’s not all – over the year, we publish articles based on learnings from the survey, like these. Each article published using responses from the survey contributes to the information available to those affected by Parkinson’s and helps them connect with those who have walked the same path.
The 2019 survey
The Parkinson’s In America 2019 survey is now closed! Thank you to all of those who shared your experiences in the survey. One voice may seem like it won’t make a difference, but each voice can change how others perceive life with Parkinson’s and bring comfort to someone coping with his or her diagnosis.