Map of the U.S. over an infographic chart

Parkinson's Disease In America: What’s That?

Last updated: June 2022

The Parkinson's Disease In America survey is now closed. We appreciate all those who took the time to take the survey.

A Parkinson's diagnosis is a shock, but what can make it more difficult is the lack of information available for patients and their loved ones. Many people quickly jump online to research the ins and outs of Parkinson's but have trouble finding helpful information that can tell them what to expect. Even more difficult can be finding someone who actually lives with Parkinson's to connect with and share experiences.

What will the survey ask me?

The survey will ask about diagnosis, symptoms, symptom management, quality of life and relationships, healthcare professional engagement, and treatment awareness and experience. We do not require your name, address, or other personal information. 

Please note that you do not have to take the survey all at once. Feel free to bookmark the survey in your Internet browser and return when you are able. You will resume where you left off.

How can a survey help?

Each person that takes the survey contributes to a better understanding of Parkinson's and can help others who are going through it feel less alone. Sharing experiences in the survey can reveal how similar each person’s journey with Parkinson's can be, as well as the differences that make each journey unique.

What happens after I take the survey?

After the survey closes each year, the Editorial Team at takes your responses and creates an infographic filled with information about life with Parkinson's. But that’s not all – over the year, we publish articles based on learnings from the survey, like these.

Each article published using responses from the survey contributes to the information available to those affected by Parkinson's and helps them connect with those who have walked the same path.

How do we use the In America Survey data?

Survey responses help us and our partners better understand the Parkinson's community. All survey responses are kept confidential, reported only in total (your specific responses will not be reported individually), and will become property of Health Union, LLC.

One voice may seem like it won’t make a difference, but each voice can change how others perceive life with Parkinson's and bring comfort to someone coping with his or her diagnosis.

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