hubby
"Let down .
After five years of being told I have parkinsons my condition has been changed to parkinsons +
Does anybody have any experience of this condition?
I'm 61 years old and I think this may be a game changer .
Progressive Supranuclear paralysis is the technical name.
Does anybody have any experience of this?"
Thank you for sharing. I have known several people diagnosed with a Parkinson's plus syndrome. One was a relative with PSP. I do not know for certain, but I am pretty sure his visual problems were wheel gloved to using a wheelchair. He didn't respond to carbidopa-levodopa so it was stopped. I don't know that your path will bear any resemblance to his. A friend of mine is an occupational therapist with Parkinson's experience (her dad and some patients) and I've learned from her that various therapies help, especially when started as needed. That's all I know. I hope you receive more suggestions/help. Kind regards, Lorraine, Parkinsonsdisease.net.com
Thanks Lorraine 😊. Hàs anybody else got anything? only me then?? 
Hello, I'm not positive this is the same type but I took a bet on it to share an article we had on our site. I hope it's helpful. Let us know.
https://parkinsonsdisease.net/answers/progressive-supranuclear-palsy-psp
All the best, Suzanne Troy, fellow moderator for ParkinsonsDisease.net