Misdiagnosed????
So my dad has had parkinsons for 18 years. We have slight suspicion that he may have been misdiagnosed. His only real symptom for 16 of the 18 years was a slight tremor which never progressed.
2 years ago he fell and never regained his balance and lost much of his cognitive ability. We feel if he were misdiagnosed that the meds he was taking for so long did a lot damage and may have lead to where he's currently at. Thoughts? Thanks
I am sorry to hear that you and your family are going through this. I included an article on misdiagnosis here, just in case it may be of interest -https://parkinsonsdisease.net/living/common-misdiagnoses. I also included diagnosis information here -https://parkinsonsdisease.net/diagnosis-treatment. Has consideration been given to getting another physician's opinion? If you and your family believe there may be a misdiagnosis this could be something to think about. I hope you and your family find the answers you are searching for. Wishing you all well. -Jessica, Team Member I have spent an hour typing a reply, only to have it disappear. I didn't get to post it yet, This is a common Occurrence, And very discouraging. A summary Of my posting Is that I was misdiagnosed 5 years ago, have NEVER had an "on" time: I don't have any tremors or typical symptoms, except that I initially would freeze when i had to pivot. Between 2018 & 2019 I visited 6 Neurologists all of whom said I did not have PD and all concurred what I needed was aggressive PT. the 7th Neurologist I visited had me take a DaTscan, which she used to diagnose me coupled with my Freezing up when she asked me to pivot.
Since that time I've been on medications know that what to do don't seem to work. I live in an Assistant Living Facility That requires that I take medication for PD. I have not visited in neurologist for three years. I live in Cape Coral Florida, & I can't find movement specialist.
Results of this misdiagnosis include unintelligible speech and having to sit in a Wheelchair to Slowly type This response. Please Forgive All typos... I'm using a Voice to type program.my heart goes out to you. <3 It sounds like you have endured so much. No need to apologize here! I shared an article on finding a specialist in your area, which has a link to search near you - https://parkinsonsdisease.net/answers/find-a-movement-disorder-specialist. I hope the shared information proves helpful in your search for a specialist. We are here for you anytime. Sending hugs your way. -Jessica, Team Member
