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I was diagnosed around 6 years ago. Fortunately until now I have been fairly symptom free except for tremors in my left arm, which are controlled with meds. As of a year ago, the big issue I face every day is fatigue and profound fatigue. On fatigue days I can accomplish at least one major task like grocery store with help from my husband. On profound fatigue days I can do very little besides care for myself. I do know that being in a group setting for any amount of time is very tiring, and the following day is profound fatigue. Does anyone else experience this same pattern with fatigue? Are there any suggestions for coping with fatigue?

  1. Hello. Sorry to hear you are experiencing fatigue. This is very common symptom of PD. Here is one of our articles on the subject that I hope you find useful: We support each other in this community as those with PD or those like me as care partners. Let us know if we can help in any other way. All the best, Suzanne Troy, community member

    1. Extreme fatigue is hard to deal with as it can limit your social interactions. I also find that group activities can be overwhelming although I enjoy being with family and friends. I try to schedule activities for mid day or early evening when I’m at my best and never more than once in a week. I plan on making the following day one of complete rest and use the time to catch up on art projects or reading. Sometimes even a phone conversation can be too difficult. As with so many aspects of PD we need to always have a plan and know what works best for us. Family and good friends understand and do not put undue pressure on me. I hope you can find a way to cope and still enjoy some social gatherings. Wishing you all the best. Thea DeStephano Community Team Member

      1. Your reply was very helpful. Thank you.

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