apathy
When I read the vast majority of posts on this website I get confused. Everyone seems so upbeat and despite PD having a good life. Which is great and I applaud you. My husband has PD and Dementia - perhaps its the dementia that makes the difference. He has no interest in anything, seldom speaks and sleeps most of the time. As his only carer it gets me down too. Am I doing something wrong? I know they say everyone is different but I can't help wanting to know why my husband isn't doing better.
Hi
- I just wanted to jump in here to say you absolutely are not doing anything wrong. There are such heavy emotions that can come up as a caregiver and I think many people in your position feel as if they could be doing more, or doing something differently. It is so understandable that PD can get you down. As you mentioned PD is different for everyone, and everyone copes with a diagnosis differently. But with a diagnosis like PD, especially when it involves dementia, it can be really hard to feel upbeat and positive - and some days, even impossible. Sending you a hug. Thanks for feeling comfortable sharing so openly with us - I know there are others in this community who can relate to these challenges. Best, Lauren (ParkinsonsDisease.net Team) 
At first im also like your husband feeling but acceptance is the key live life to the fullest even with Pd.
Carol9 Have you discussed your husband’s lack of interest in anything and being apathetic with his doctor? As Lauren said it can be very difficult as a caregiver to cope with these emotions. The neurologist may be able to refer you to a counselor to help you deal with these issues. Please take care of yourself and know you are doing your best.
Thea DeStephano Community Member
