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A Letter to My Former Self: Surviving a Parkinson’s Diagnosis

There will be days you will want to quit. I know you can do this not just because I am like you but because I AM YOU. You (I) will get through things you didn’t know any human being could survive, and I can’t lie to my former self. This is going to hurt. The unrelenting loss of a degenerative condition progressing much faster than expected is enough to take anyone into despair.

Just don’t get lost in the proverbial rabbit hole of illness, because this form of isolation is its own killer. YOU must become the killer in this arena and killers don’t give up.

Pro tips for dealing with Parkinson’s

Even though I’m nearing a decade since diagnosis, I still have no solutions or answers to offer, but here are a few tips:

  1. Don’t assume you’re alone. Everyone is dealing with something they find overwhelming.
  2. Depression is a liar. Don’t believe everything (or anything) you think.
  3. Like Mr. Rogers (the humble guru) advised, look for the helpers.
  4. Accept the fact that Parkinson’s will slow you down.
  5. You are only a human being having an experience causing tremendous uncertainty. It’s okay not to know what to do or how to adapt with any skill or grace. Things will be messy and chaotic sometimes.
  6. Enjoy and savor life’s small delights. A long walk with a friend. Music. Dancing. Love letters. Take risks. Not the type that put anyone in harm’s way, but risk being out of your comfort zone.
  7. You never know when serendipity will arrive!
  8. Don’t date or hang around anyone who refuses to “see” you clearly. You are dealing with things not everyone is capable of understanding.
  9. COMMUNICATE.
  10. Stay connected. You cannot do this alone.
  11. Cultivate and provoke compassion.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The ParkinsonsDisease.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Dan Glass moderator
    2 weeks ago

    Big respect! This is great. I agree with your points and love your attitude!

  • Hubby
    2 weeks ago

    I will add to that, take one day at a time. The future will look after itself. Don’t reflect on the past. It’s gone, and so has the old you. That leaves a different you.A new you. Not necessarily a worse you.
    My life since being diagnosed is unrecognisable. I am really not the same person. I actually enjoy life more. I have had a period of sadness but that wasn’t a place where I wanted to stay.
    We only get one life, so why spend it wallowing in sadness and self pity?
    Adapt to your situation and make it work for you.
    Peace and love to all sufferers
    Hubby.

  • Dan Glass moderator
    2 weeks ago

    You put this so well. As John Lennon said, life is what happens when we’re busy making other plans. Thanks for speaking truth to all!

  • April.Sluder moderator
    2 weeks ago

    Thank you so much for sharing your thoughts @Hubby. I’m so glad you are enjoying life. April – Migraine.com Team

  • Nacho311
    2 weeks ago

    This really hits home for me lately. I love #3 and #6.

  • April.Sluder moderator
    2 weeks ago

    Yes, those are really good tips @Nacho311. Do you have any additional tips you could share? April – Migraine.com Team

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