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  • My friend has non-tremor PD. He is 79 and has been on medication regimen for over 1 year. Neurologist recommended altering diet to avoid proteins causing Off time too soon. Trying to eat proteins only at evening meal or when you can afford to expect Off Time. He has lost 25 lbs. in 3 months and is at ideal weight for his height but should not lose any more weight. Anyone come up with good breakfast, lunch. Snack, dinner ideas that help meds keep working? Do eggs at breakfast trigger ‘Off Times’ or should be ok? Also - he takes meds every 4 hours. Do you wait to eat 2 hours before and 1 hour after? Or any suggestions? Thank you @campbell08527

    Hi everyone. I'm very scared right now. I have been experiencing the symptoms of Parkinson's disease since I was 15. I remember always wondering why can't I move my legs when I want them to. It felt as if they were glued to the ground. Why does changing facial expressions suddenly feel so hard. Why does what I say feel as if I am slurring or it is monotonous. All these things doesn't happen with me often. I'm 19 now and I still experience all that sometimes and all that happened with me today too. So I thought why not google my symptoms. I'm very scared. All my symptoms show that I have Parkinson's. I don't know what to do. If I get it at this early age I will become a burden on my family. I already have so many problems to deal with and getting this will just break me😭

    My husband is about 8 years into his PD diagnosis and is dealing with increasing paranoia and making unfounded accusations. Has anyone else dealt with this? And if so, have you found a way to effectively respond to the evidence of these symptoms?

    Hello - I joined today to offload really in a safe environment and maybe get some tips/pointers. I care for my husband who has had PD for 20yrs, he is 69, we live in the UK. Last summer ‘Forest Gump’ kicked in and because of this his falls escalated (I call it Forest Gump as he can’t stop running). A lot of his falls are down to not being able to risk assess and he thinks he knows best. The start of this year he had a heart attack, was hospitalised locally then moved to a Specialist hospital 2hrs away whilst there he had a cardiac arrest in front of me, stopped breathing, was resuscitated with CPR & electric shocks, spent a week in critical care & 21 days later is allowed to come home. Every day he was in hospital I was with him from 8am to 8pm. exhausted was an understatement and that exhausting feeling stays with me. I do everything in the house & outside (3 acres), we have 2dogs oldest one is 16yrs & had her 3rd stroke last month, I slept with her on the floor for 2wks - slowly slowly she is getting stronger. My husband (when reminded/constantly nagged) uses a frame in the house 80% of the time, the other 20% he is like a pin ball bouncing off the furniture/walls. I am constantly on heightened alert to noises/bumps and run like a mad women fearing he has fallen. Last week we got a mobility scooter which for the first time in ages has allowed him outside & we walk the perimeter with the healthy dog daily. His day he wakes 7am’sh stays in bed till lunchtime watching TV - he does come into the kitchen for his breakfast then returns back to bed. I use to bring his breakfast to him, that’s stopped now as the carpet & his surrounding area had breakfast as well, I was hoping with him having to come to the kitchen for his breakfast he would then stay up for the rest of the day. When he does get up he moves to his chair in another room & continues to watch the TV till bedtime. I feel like a broken record from continuously encouraging......nagging....shouting ‘he needs to exercise’ (1) for his Parkinson’s (2) preventing the next heart attack. We have had a treadmill for 3mths now, he has been on it twice! We rarely go anywhere, he doesn’t want to & if we do he wants to come home not long after arriving. I feel my days are 24/7 caring/washing/cleaning/grass cutting/cooking/shopping - since his heart attack life for me has stopped, it feels like I haven’t taken a breath. I am sooooooo angry as I feel things could be different if he made just a little effort - am I being selfish?

    Hi I would like to chat with other care givers, My husband sleeps a lot and when he walks loses his balance so afraid he will fall

    New there. Still in denial and scared. Have all the symptoms. Need support.

    My family has been struggling with my mom the past few months. She was diagnosed with early-onset pd 20 years ago. Over the past year...especially the last 5 months, she's rapidly deteriorating. She falls multiple times a day, has broken her hip and arm and yet she refuses to use her wheelchair. She's forgetful, agitated, and has a very hard time talking. Is this type of behavior common with PD? Refusing to let people help and denying there's a problem?

    My dads 79 and has had PD for 7 years. Probably stage 3/4. Has tried different meds but now on 2 sinemet plus(25mg) tablets 3 times a day. After he takes his first 2 in the morning he goes into a zombie like state unable to lift his head or eyes. He looks dazed but can speak. This lasts until about an hour before his next dose and then it all starts again. He gets a few hours each day in between taking these meds when he feels relatively normal. This can’t be right? Any advice. Thanks

    Hi everyone! I would love to solicit your thoughts on revealing your PD diagnosis at work? I have been advised by my neurologist, family and friends to NOT reveal it at work because they can use it to terminate your employment. Then, you read that there are protections for being terminated because of a PD diagnosis, but HR groups can be tricky in disguising that reason when you're let go, so how to prove it? PD websites give varying advice: don't reveal your PD diagnosis until you're ready to ask for accomodations vs. reveal it because you will miss out on a lot of support, and hiding PD is stressful and exhausting. What are your thoughts? Thanks in advance! Jennifer (BakerandShaker)

    I'm a 75 year old man, in Feb. of 2013 I had my first DBS implant,(for the left side) to control severe tremor, I had it done at the Cleveland Clinic, and couldn't of been more pleased with the good results! Then in Sept. of 2015 I had the DBS for the right side implanted, again very happy with the results! If you are a good prospect for DBS because of your severe tremor I would, from my personal experience say go ahead, it sure helped me! I've seen at least 95% improvement on the left side, (I'm left handed) and about 85% to 90% on the right side. If you would like to know more about my condition and DBS experience I could tell more of it, If you comment on this post, I'll write more.

    Anyone have impulse control disorder side effects from sinemet?

    Does anyone use essential oils to manage the symptoms of PD?

    Last week I was formally diagnosed as having PD. I am 48 years old and have only minor symptoms as of yet. Does anyone have any suggestions to help me cope with my diagnoses? Also, does anyone have any suggestions on how to cope with unexplained anxiety? Thanks.

    I'm 53. Where to start. Well I have been told to see a neurologist but that is probably 6 months away. My first tremors coincided with sertraline usage and were mostly in the right hand. Around 6 years ago I came off the anti depressant and within 6 months the tremors also went. But a year later I was back on the sertraline. Tremors also came back. Then a major scare, i had a night time seizure, ended up in hospital, had MRI etc. but all came up negative. So I hit Google and found various connections between sertraline and seizures, naturally I was determined to wean myself off the sertraline. Did so gradually and have been off it completely for 2 weeks. So that is the brief back story! This time however the tremors are back and not enough time has passed to know if they will go. So my first question is sertraline a known cause on Parkinsons like symptoms? The odd thing is the tremors in my right leg and right arm ONLY occur when I am anxious.

    Hi everyone, I am new to the forum. I am a trainee medical student hoping to specialise in neurology. I have a particular interest in Parkinsons disease and I wanted to get the prospective of you, the patients, on the hardest part of living with the disease. This can be anything from the symptoms themselves to the effect they have on your daily lives to the social stigma you may have experienced. Thank you for helping to broaden my understanding, Best wishes Chris

    Along with exercise, complementary therapies like yoga and mindfulness meditation can help improve overall quality of life. What kind of exercises or complementary therapies do you use to help manage your symptoms? Have questions about exercise and wellness? Comment below!

    Pain can be a huge struggle for those with Parkinson's disease. We want to hear from you about the ways you experience and manage pain. Join the conversation!

    Hi. I just found out this month that I have Parkinsons though I suspected for several months. At first, I thought it was just my arthritis getting (much) worse. I was already planning on getting a Collie pup that I will train to be a Service Dog, but I'd like to know if there are any books, websites, DVDs , etc. on training a dog specifically to assist someone with Parkinson's? Thanks.

    There are a group of local people with Parkinson's trying to figure out how to make information more accessible. There is much available (maybe too much) but how do you find what you need in your own geographic area? Is this a problem in many areas? What can be done? What are some groups doing to solve this issue? Somehow the docs have to have the local support information and then have to deliver to their patients, especially the newly diagnosed. How to accomplish? We are interested in what others are doing to aid in getting localized info to people with Parkinson's in their town or area.

    Which invisible PD symptom do you wish people would see and understand? We want to hear more about your journey with the unseen difficulties with PD.
Viewing 20 topics - 1 through 20 (of 43 total)