My husband is about 8 years into his PD diagnosis and is dealing with increasing paranoia and making unfounded accusations. Has anyone else dealt with this? And if so, have you found a way to effectively respond to the evidence of these symptoms?
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My dads 79 and has had PD for 7 years. Probably stage 3/4. Has tried different meds but now on 2 sinemet plus(25mg) tablets 3 times a day. After he takes his first 2 in the morning he goes into a zombie like state unable to lift his head or eyes. He looks dazed but can speak. This lasts until about an hour before his next dose and then it all starts again. He gets a few hours each day in between taking these meds when he feels relatively normal. This can’t be right? Any advice. ThanksHi everyone! I would love to solicit your thoughts on revealing your PD diagnosis at work? I have been advised by my neurologist, family and friends to NOT reveal it at work because they can use it to terminate your employment. Then, you read that there are protections for being terminated because of a PD diagnosis, but HR groups can be tricky in disguising that reason when you're let go, so how to prove it? PD websites give varying advice: don't reveal your PD diagnosis until you're ready to ask for accomodations vs. reveal it because you will miss out on a lot of support, and hiding PD is stressful and exhausting. What are your thoughts? Thanks in advance! Jennifer (BakerandShaker)I'm a 75 year old man, in Feb. of 2013 I had my first DBS implant,(for the left side) to control severe tremor, I had it done at the Cleveland Clinic, and couldn't of been more pleased with the good results! Then in Sept. of 2015 I had the DBS for the right side implanted, again very happy with the results! If you are a good prospect for DBS because of your severe tremor I would, from my personal experience say go ahead, it sure helped me! I've seen at least 95% improvement on the left side, (I'm left handed) and about 85% to 90% on the right side. If you would like to know more about my condition and DBS experience I could tell more of it, If you comment on this post, I'll write more.Anyone have impulse control disorder side effects from sinemet?Does anyone use essential oils to manage the symptoms of PD?Last week I was formally diagnosed as having PD. I am 48 years old and have only minor symptoms as of yet. Does anyone have any suggestions to help me cope with my diagnoses? Also, does anyone have any suggestions on how to cope with unexplained anxiety? Thanks.I'm 53. Where to start. Well I have been told to see a neurologist but that is probably 6 months away. My first tremors coincided with sertraline usage and were mostly in the right hand. Around 6 years ago I came off the anti depressant and within 6 months the tremors also went. But a year later I was back on the sertraline. Tremors also came back. Then a major scare, i had a night time seizure, ended up in hospital, had MRI etc. but all came up negative. So I hit Google and found various connections between sertraline and seizures, naturally I was determined to wean myself off the sertraline. Did so gradually and have been off it completely for 2 weeks. So that is the brief back story! This time however the tremors are back and not enough time has passed to know if they will go. So my first question is sertraline a known cause on Parkinsons like symptoms? The odd thing is the tremors in my right leg and right arm ONLY occur when I am anxious.Hi everyone, I am new to the forum. I am a trainee medical student hoping to specialise in neurology. I have a particular interest in Parkinsons disease and I wanted to get the prospective of you, the patients, on the hardest part of living with the disease. This can be anything from the symptoms themselves to the effect they have on your daily lives to the social stigma you may have experienced. Thank you for helping to broaden my understanding, Best wishes ChrisHi I would like to chat with other care givers, My husband sleeps a lot and when he walks loses his balance so afraid he will fallAlong with exercise, complementary therapies like yoga and mindfulness meditation can help improve overall quality of life. What kind of exercises or complementary therapies do you use to help manage your symptoms? Have questions about exercise and wellness? Comment below!Pain can be a huge struggle for those with Parkinson's disease. We want to hear from you about the ways you experience and manage pain. Join the conversation!Hi. I just found out this month that I have Parkinsons though I suspected for several months. At first, I thought it was just my arthritis getting (much) worse. I was already planning on getting a Collie pup that I will train to be a Service Dog, but I'd like to know if there are any books, websites, DVDs , etc. on training a dog specifically to assist someone with Parkinson's? Thanks.There are a group of local people with Parkinson's trying to figure out how to make information more accessible. There is much available (maybe too much) but how do you find what you need in your own geographic area? Is this a problem in many areas? What can be done? What are some groups doing to solve this issue? Somehow the docs have to have the local support information and then have to deliver to their patients, especially the newly diagnosed. How to accomplish? We are interested in what others are doing to aid in getting localized info to people with Parkinson's in their town or area.Which invisible PD symptom do you wish people would see and understand? We want to hear more about your journey with the unseen difficulties with PD.I have been diagnosed with ET. My father also has ET so I am guess I get it from him. It came on right before I turned 40. The question I has any one experienced this? Just recently (maybe im just noticing it) when my thumb starts to tremor and I put my hand at rest ex in my lap it takes up to 20 secs for my thumb to stop with the tremor. It also stops if I support it with my hand. Then it will stay still until I move my hand again. Also this is intermittent (seems it never does it when I want to show somebody). This new tremor is kinda stressing me out because 1. it is new 2. I don't know if it would be something besides ET.As a caregiver or care partner, traveling with someone with Parkinson's can be difficult. Have tips or advice for other caregivers while planning a vacation, or even just going to the store? Share with us below!I have a question for the community. I was diagnosed with PD in 2015 after at least a decade of “soft” symptoms, including the sensation of an internal (not visible) fast, generalized tremor. I used to attribute it to my thyroid hormone, but that weird sensation of being a “human tuning fork” was always transient. The symptoms that brought me to diagnosis were L sided stiffness and bradykinesia. Over the past ten months or so, i have had approximately eight episodes of what I call a Parkinson’s “attack”. These episodes happen exclusively at bedtime and are characterized by significant sensation of internal vibration, some restlessness, and worsening of Parkinson’s stiffness. These episodes are unnerving, to say the least. As a nurse practitioner (now retired due to PD), I entertained the possibility that the episodes were panic attacks. However, the episodes fail to meet panic attack diagnostic criteria. I take SInemet 25/100 1.5 tabs 3x/day and gabapentin 300mg at hs for “restless legs” sensation in my L arm and leg. I have read that everyone’s experience with PD is quite unique/individualized. I was just wondering if anyone else has had episodes like this. Thank you!I would like to share how my family has benefited from this website. My Dad, who also has Parkinson's, has been having trouble with double vision and eye fatigue. He could not read and had to stop driving. This article, https://parkinsonsdisease.net/clinical/vision-issues-symptom/, was so informative that I shared it with his eye doctor. His doctor, who, at a prior visit said that his vision issues were due to dry eye, reconsidered his diagnosis and did additional testing. My Dad now has prism glasses and can read and they have eliminated his double vision. Thanks ParkinsonsDisease.net! Regards, Kelly, ParkinsonsDisease.net Team MemberReceiving the diagnosis of Parkinson's disease can be one of the most difficult things one will face. Now that you've been diagnosed, what advice would you give to others who have been newly diagnosed?
Viewing 20 topics - 1 through 20 (of 38 total)