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Very scared (Young onset)

  • By Anonymous

    Hi everyone. I’m very scared right now. I have been experiencing the symptoms of Parkinson’s disease since I was 15. I remember always wondering why can’t I move my legs when I want them to. It felt as if they were glued to the ground. Why does changing facial expressions suddenly feel so hard. Why does what I say feel as if I am slurring or it is monotonous. All these things doesn’t happen with me often. I’m 19 now and I still experience all that sometimes and all that happened with me today too. So I thought why not google my symptoms. I’m very scared. All my symptoms show that I have Parkinson’s. I don’t know what to do. If I get it at this early age I will become a burden on my family. I already have so many problems to deal with and getting this will just break me😭

  • By TwitchyWoman Moderator

    Anxious Unicorn, the first thing you should do is see your doctor, who can refer you to a neurologist or Movement Disorders Specialist. Your symptoms could be Young Onset Parkinson’s or something else, but you will not know unless you see a doctor about it. If you have Parkinson’s Disease, there are many resources for you, including this website, that can help. I wish you all the best.

  • By Karl Robb Moderator

    Hi Anxious Unicorn,

    First, it is important to know that you are not alone. I was diagnosed at 23 but showed symptoms at 17 and maybe earlier.I was lost and searched for answers.It took me 6 years and 9 doctors to get a diagnosis.Neurologists have a better understanding of treating this illness since, I was diagnosed almost 30 years ago.

    I totally agree that it is important to get an appointment with a Movement Disorder Specialist who can help you get some answers. In the meantime, try to lower your stress and anxiety levels,by doing what brings you joy. Try to keep active and flexible. Yoga, meditation, reiki, and massage have helped me. There is a great deal of really good information available to you on the web and some to avoid–I highly suggest that you read the experts on this on this site as they are all quite helpful. I hope that you are able to get the help that you want very soon. Good luck! Please feel free to let me/us know if you have questions.

    Karl R. Community Team Member