Journey Is A Stupid WordWho the hell came up with the word journey to describe living with a life long debilitating, progressive disease like Parkinson’s? What a ridiculously, stupid and demeaning term to use... By Cindi6 min readBookmark for laterReactions 0 reactions Comments0 comments
My Parkinson's experienceHello there, well here I go. I'm 60 and started to experience parky symptoms around 2014. I was diagnosed "officially" in 2019. During those 5 years and on, I continued... By CommunityMember1af90c1 min readBookmark for laterReactions 0 reactions Comments0 comments
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 3)This story is the last installment of a member-submitted 3-part series. Part 1 of Jackie's story can be found here and Part 2 can be found here. The person or... By ParkinsonsDisease.net Team4 min readBookmark for laterReactions 0 reactions Comments0 comments
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 2)This story is the second installment of a member-submitted 3-part series. Part 1 of Jackie's story can be found here. First recommendation: ENLIST HELP!! This is supposed to be fun... By ParkinsonsDisease.net Team6 min readBookmark for laterReactions 0 reactions Comments0 comments
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 1)This story is the first installment in a 3-part series. Stay tuned for Parts 2 and 3. In early January 2022, I had been feeling very depressed at having reached... By jackiebob20063 min readBookmark for laterReactions 0 reactions Comments0 comments
No One is Actually Interested in Parkinson'sListen. My story is about endings, not beginnings. Nor is it about suffering. It is about protest. So get real. I started my journey 16 years ago. It has been... By bramstoker2211 min readBookmark for laterReactions 0 reactions Comments0 comments
My Life Is Over Thanks to Parkinson'sMy life is over thanks to Parkinson's. Everything ... my health, my looks, I don't even go out for meals anymore. It was my Birthday recently. My son came over... By Mastermind2 min readBookmark for laterReactions 0 reactions Comments1 comments
How Me?Why me, is the usual question that arises in our minds more often than not when we face difficult situations. In the case of Parkinson's too this question applies. I... By CommunityMember0ba8941 min readBookmark for laterReactions 0 reactions Comments3 comments
Restless Legs Need Some RestMaybe it was there before Parkinson's disease hit me. But my doctor says PD is what lies at its base, restless legs syndrome. It comes creeping in, like a screw... By CommunityMemberebc49f1 min readBookmark for laterReactions 0 reactions Comments1 comments
My Emotions and Physical Pain After DiagnosisHello All, my story, maybe not so short, is that my first symptom was tremor in my hands finally severe enough to make using them difficult in most tasks. The... By Attitude3 min readBookmark for laterReactions 0 reactions Comments1 comments
A Long RoadMy journey began years ago with just a little weakness on my right. If I held my right hip I'd be fine. That went on for years until last year... By 1 min readBookmark for laterReactions 0 reactions Comments1 comments
FallingI am 67, Parkinson’s for at least 7 years. Preceding my fall, I was careless and sloppy as I went up some stairs and tumbled back down. I have vowed... By Sedona20121 min readBookmark for laterReactions 0 reactions Comments2 comments
Outing Myself with YOPDIt began in 2010, a feeling of fatigue that felt inordinate to activity. A negative test for Lyme disease and an internist’s assurance that a mother of 4 would, of... By Beth Hanna5 min readBookmark for laterReactions 0 reactions Comments5 comments
Am I Losing my Mind?I am 68 years old and was diagnosed with Parkinson's last October. It took months to get into a neurologist, the first one diagnosed my with ataxia, which I was... By NORDSTRUM1 min readBookmark for laterReactions 0 reactions Comments1 comments
Diagnosed with Parkinson's in 2015Hi my name is Joan, I am an 83 year old woman living in a lovely little market town called Thornbury, South Glos. I have been diagnosed with Parkinson's disease... By CommunityMember86418661 min readBookmark for laterReactions 0 reactions Comments2 comments
The Battle of PD Is DifficultI was diagnosed with young-onset Parkinson's disease (YOPD) at 42 years old, but I think I had YOPD during my teenage years because at that time my voice become lower... By Nanel V. Gonowon2 min readBookmark for laterReactions 0 reactions Comments3 comments
Bugger!My name is Tony, and I've had this disease for over 20 years, in 2 months I'll be 59. I had to stop working as a heavy vehicle technician with... By Time bandit1 min readBookmark for laterReactions 0 reactions Comments1 comments
Kings College Hospital VisitMy appointment came through for 1st August 2013 – only 2 months after my diagnosis. Well impressed! I asked a good friend J to accompany me to my first appointment... By DiVivRow3 min readBookmark for laterReactions 0 reactions Comments1 comments
Unplayable pianosOn a December morning in 2019, I was pleased to see a new episode of Tim Harford’s podcast, "Cautionary Tales," in my playlist. The episode’s curious title, "Bowie, Jazz, and... By svhunsaker3 min readBookmark for laterReactions 0 reactions Comments0 comments
Exploring OptionsIt is almost the end of April 2013 and I went to see my GP with my list of symptoms all affecting the left hand side of my body. I... By DiVivRow4 min readBookmark for laterReactions 0 reactions Comments0 comments