The long road

I am Denis Smit. Married for 40 years to the most amazing wife Tertia. I have 3 children and 2 grandchildren whom dearly love. I have had severe chronic pain for over 30 years, had more than 11 major operations (spine and leg) and hundreds of medical procedures. I have written a book about my life with chronic pain called “Pain beyond belief” published on Amazon.

I have had Parkinson’s for 7 years now and I was basically doing fine but recently after a knee operation I have deteriorated a lot and was bed-ridden almost. I luckily was admitted to hospital where 3 excellent doctors fixed my meds and now I am walking unaided but still a lot unsteady.

My Parkinsons has become bilateral as well. I have developed significant voice, language and swallowing problems. I am keen to meet members who have high pain levels as well as PD. Also anyone who has voice/swallowing problems to see how they cope with it.

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  • Chris H. moderator
    1 month ago

    Thanks so much for sharing your story, Denis. It seems like you’ve really been through a lot. Glad to hear that your doctors were able to get you back on your feet! The vocal and swallowing issues you’re experiencing are not uncommon. I thought I’d share two articles from one of our contributors who talks about his speech issues, as well as the treatment he’s begun for it: https://parkinsonsdisease.net/living/speaking-slurganese/ & https://parkinsonsdisease.net/living/lsvt-loud-program/. I hope this helps! – Chris, ParkinsonsDisease.net Team

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