How Can I Help Others With Parkinson's?When I was diagnosed with Parkinson’s five years ago, I knew nothing about it nor did I have a clue about the trip it was going to take me on... By Tom Sheppard2 min readBookmark for laterReactions 0 reactions Comments2 comments
Children or No Children When I Have PD?Deciding when and if we should have children is a very personal decision for every woman. The reasons are as varied and as unique as snowflakes. It is also true... By Maria De Leon2 min readBookmark for laterReactions 0 reactions Comments1 comments
World Parkinson's Disease DayApril 11th is World Parkinson's Day and April is Parkinson's Awareness Month. Happy birthday to James Parkinson! He was a neurologist, geologist, scientist, and activist. He was born April 11... By Frank Church4 min readBookmark for laterReactions 0 reactions Comments2 comments
Hiding / Not Hiding with Parkinson's DiseaseIn the world of disabilities, one of the top “don’t say this to me” statements is “but you don’t look sick.” In what it can infer (quit your whining, pull... By Dan Glass4 min readBookmark for laterReactions 0 reactions Comments7 comments
Having a Strategy to Help Manage Chronic IllnessIn no way do I reduce the severity of chronic illness to a game or even a puzzle, but they all require a plan and a strategic perspective. Without an... By Karl Robb2 min readBookmark for laterReactions 0 reactions Comments1 comments
Filling a Need: Resources for Parkinson's Patients in Orange County, CAYou have just been diagnosed. Now what? Your doctor gives you good medical advice. But there is much more to be learned. Where do you start? Many feel it is... By Tom Sheppard2 min readBookmark for laterReactions 0 reactions Comments1 comments
Treating Sleep Apnea in People With PDObstructive sleep apnea (OSA) is commonly found in patients with PD. It contributes to poor quality of life, including higher rates of cognitive dysfunction in people with both conditions, according... By TK Sellman3 min readBookmark for laterReactions 0 reactions Comments2 comments
Accepting Help: Putting Aside Pride“I don’t need help from strangers coming into my home!” I’ve actually felt this way before and made excuses to justify those feelings. If you or a loved one “necessitates”... By Michael Church2 min readBookmark for laterReactions 0 reactions Comments0 comments
Degrees of Parkinson's Pain"What is pain like for you?" people often ask me in many different ways. For instance, someone will wonder, "Do your Parkinson’s tremors hurt?" They're annoying, but not painful. Sometimes... By Dan Glass5 min readBookmark for laterReactions 0 reactions Comments5 comments
Does Parkinson’s Make You Short of Breath?Shortness of breath (dyspnea) is defined as a sensation of extreme breathing discomfort or breathlessness. It has been described as an intense tightening in the chest or 'air hunger' –... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments8 comments
Parkinson's Anxieties: Financial StressIn this series, we discuss causes of anxiety for those facing physical illness, like Parkinson's disease, and its side effects. Phrases in quotes are the words of our community members... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments1 comments
How I Deal with Chronic Pain in Parkinson'sA large number of aging adults (65+ years of age) and many of us with Parkinson's are dealing with chronic pain. However, chronic pain is not a mandatory part of... By Frank Church5 min readBookmark for laterReactions 0 reactions Comments5 comments
The Emma Watch: A Wearable Device to Ease PD TremorsEditor's Note: The Emma Watch was a prototype designed by Microsoft specifically made for someone with PD. Unfortunately, it is uncertain if a commercially available product will be made. Microsoft... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments33 comments
What Antidepressants are Safe for People with Parkinson’s?A hot topic in the Parkinson’s community is whether it is safe to take antidepressants when you have depression and Parkinson's disease (PD). And if so, what is the best antidepressant... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
What Not to Say to Someone with Parkinson’s DiseaseWe all do it—we all say that thing, putting our foot in our mouths, and then immediately regret it. We tend to do it more often when we don’t know... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments14 comments
Back to Basics: Managing Stress While CaregivingBeing a care partner for a loved one with Parkinson’s disease can have many rewards and many moments of stress. With the focus on medical appointments being mainly on the... By Brooke Huminski3 min readBookmark for laterReactions 0 reactions Comments1 comments
Taking an Active Role in Your HealthFor some patients, taking an active role in your health and being more involved in your healthcare team can be challenging. Some individuals may feel overwhelmed by all of the... By Emily Downward3 min readBookmark for laterReactions 0 reactions Comments2 comments
REM Sleep Behavior Disorder: A Parkinson's Wake-Up CallSleep disturbances are common in those with Parkinson's disease (PD). Sleep disorders are also thought to be influential over neurological health. For instance, if you don’t get enough deep sleep... By TK Sellman4 min readBookmark for laterReactions 0 reactions Comments5 comments
Pain: An Invisible Symptom of Parkinson'sWhen thinking about PD, some of the symptoms that come to mind the quickest are visible issues, like tremor, shuffling gait, speech difficulties, or rigidity. However, pain is another common... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
I Can’t Hear My Spouse with PD - What Can I Do?Recently, in a weekend retreat with both patients and caregivers the two biggest complaints I heard from both parties were 1) my significant other gets mad at me because I... By Maria De Leon3 min readBookmark for laterReactions 0 reactions Comments2 comments