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@89yearsmom

active 4 weeks ago
I am my husband’s caregiver, which I find very challenging at times. He was diagnosed w/ Parkinsons 10 years ago. The challenge right now comes with his dementia. Since I’m a “newbie” to this site, I look forward to sharing and feedback. View
  • 89yearsmom posted an update 1 month ago

    I am my husband’s caregiver, which I find very challenging at times. He was diagnosed w/ Parkinsons 10 years ago. The challenge right now comes with his dementia. Since I’m a “newbie” to this site, I look forward to sharing and feedback.

    • Hi, 89yearsmom! I’m so glad you found our site. This community knows the challenges of caregiving well. I hope you find this site helpful! A couple ways you can get started with interacting with others is to post in our forums (https://parkinsonsdisease.net/forums/) or ask a question (https://parkinsonsdisease.net/q-and-a/). Please let us know if we can help you find any information! – Chris, ParkinsonsDisease.net Team Member

    • My husband’s emotional, psychological symptoms of PD now have the added dementia and sundowning. Although I thought I was informed of this phase, I find that I am totally unprepared for all the ramifications on both of us. Finding the right medications is challenging. The support from others helps, but it is a lonely road to travel. Our faith is our strength.

      • I can totally relate, as my husband and I are both struggling as well. You’re right, it’s a lonely road to travel, as most people do not fully understand the many symptoms of the disease. They think it’s only tremors. It can be overwhelming at times. My husband has dementia, but not sundowning as of yet. We both grieve the life we once had and must find ways to cope and move on. Not an easy task, that’s for sure.