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A man with his mouth open and arms spread wide speaks into a speech bubble shaped like the earth. Within the earth are people turned toward him to listen, and indications of other modes of communication.

Sharing Your Experience with Parkinson’s

Have you ever asked the question “Why me?” or more precisely, “Why do I have Parkinson’s disease?”. It’s a legitimate question, to which there is no easy answer, but it’s still one worth pursuing. In the bible, there is an illustration of the Apostle Paul who is described to have some type of thorn in his flesh placed there by Satan and he pleads to God to remove it three times, but God refuses. As a believer in the word of God, this means a lot but someone hearing this for the first time may not give it much credibility. I can or cannot prove the truth of this, I take this story based on my faith, but you can draw your own conclusion.

A bigger purpose

Many friends I have counseled as to “why me” and I have never been able to answer that question but, I have often believed myself, perhaps there is some bigger purpose. Whether it is God’s purpose or some other part of a master plan to help people with a similar affliction, the fact remains, you have Parkinson’s, why not use it, instead of it using you, to help others? But you say you don’t know me or what I go through. No, I don’t but I do know the feelings of despair and dread and self-pity and if I can spare someone else of those feelings, I’m all in. You say, I can’t, I say you can. But I’ve never taught before or counseled anyone. It’s okay. There are many things you can do.

What can I do?

  • Tell your story – There is power in your personal story about living with PD. Tell anyone who will listen.
  • Create awareness – Utilize local media, speak at a support group, attend any of hundreds of PD events.
  • Call in to talk radio – Especially during April which is PD awareness month.
  • Ask local elected officials to sponsor a proclamation declaring April, PD awareness month.
  • Start a blog – write a blog about your experience or become a contributor to this forum.

Providing hope and encouragement

My point is this. You’ve got PD. You can accept it and help others learn from your experiences or you can wallow in misery by continuing to deny and hide. I do not sugar coat anything. For some reason, God did not honor Paul’s request. I believe he allowed the thorn to remain so that others could benefit from Paul’s experience and although we never find out what that thorn was, we do know, the bible describes it as painful. For all we know it could have been Parkinson’s.

So, whether you believe in the biblical account or just think your diagnosis is a question of fate, do not let another day go by without the opportunity to ease the burden for someone else. Share your story with someone else. You just may impact someone else’s life and provide hope and encouragement for them and a positive experience for yourself knowing that you made a difference! Battle on my friends!

Tell your Parkinson’s story

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The ParkinsonsDisease.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Yellsea
    4 months ago

    HURRAY! This has been my philosophy! I am celebrating my 15th anniversary of having been diagnosed with PD!! I surround myself with positive people, I accept I cannot do somethings either at all or not as well as before PD, I never look back, only forward. I NEVER miss a party if I can help it. AND finally, the most important creed: I dance like no one is looking!

  • Michael Church author
    4 months ago

    Yellsea I am so enthused by your comments. Inspiring and captivating are your words. Make your anniversary a celebration and teach that disease, it will not control you, it will not get you down and absolutely will not win!

  • Yellsea
    3 months ago

    @Jessica.Hall Thank you for the kind words. I truly mean everything I said!! Today I had to go to my Primary care physician. Sunday I fell. I was just was standing there, the next minute I was sitting half on the floor and half on the raised dog bed!! Well Monday my bum (left cheek to be precise!) looked terrible. Today, I wish it LOOKED terrible!! There is bruising around the cheek and to the leg, or thigh. I am sitting rather uncomfortably on an ice pack. I went to my class at the Y, joked with the Peddling for PD coaches and peddled for over 38 minutes!! [Then I decided MAYBE I should see a doctor!!!

    I don’t let rhe little things get me down.They are all little things!!

  • Jessica.Hall moderator
    3 months ago

    Oh my, @Yellsea. I’m so sorry to hear you took a fall earlier this week. Glad to hear, aside from bruising and being uncomfortable, you are doing okay. You are a trooper for peddling through your class! Way to go! You said it best, “Don’t let the little things get me down.” We are grateful to have your positive energy in our community! Wishing you a speedy healing process. Kindly, Jessica- ParkinsonsDisease.net Team

  • Jessica.Hall moderator
    4 months ago

    That is absolutely amazing and so inspiring, @yellsea! I love your positive attitude and creed- dance like no one is watching! We really appreciate you being here and sharing with us. Wishing you a lovely day. Kindly, Jessica-Parkinsonsdisease.net Team

  • Yellsea
    3 months ago

    @Jessica.Hall Thank you for the kind words. I truly mean everything I said!! Today I had to go to my Primary care physician. Sunday I fell. I was just was standing there, the next minute I was sitting half on the floor and half on the raised dog bed!! Well Monday my bum (left cheek to be precise!) looked terrible. Today, I wish it LOOKED terrible!! There is bruising around the cheek and to the leg, or thigh. I am sitting rather uncomfortably on an ice pack. I went to my class at the Y, joked with the Peddling for PD coaches and peddled for over 38 minutes!! [Then I decided MAYBE I should see a doctor!!!

    I don’t let rhe little things get me down.They are all little things!!

  • Dan Glass moderator
    4 months ago

    Preach! Great stuff. Glad you’re making a difference.

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