What Does Your Care Partner Do To Support You?
Anyone who is fortunate to have a child, spouse, or other loved one care for them knows how invaluable it is to not walk the Parkinson’s path alone. We all need help and support, be it with the physical chores and errands of getting through each week or with the love and support that help us navigate the emotional journey.
It all matters.
To find out more about what kind of support you receive from caregivers, we reached out on the ParkinsonsDisease.net Facebook page, asking: What is the most valuable thing your care partner or caregiver does to support you?
More than 200 of you reacted to the piece. Here’s what you said.
We all need encouragement, often as much as we can get. Pep talks, whether daily or otherwise, give us a boost and help us shift our mindset from negative or discouraged to a place of hopefulness and positivity. Perhaps best of all, pep talks are an easy thing to ask of a friend or loved one - anyone across the country or globe can call and lend support. The next time you are on the phone with a friend or family member, you can ask that they call you at a later date. You can let them know that you’d really appreciate this kind of support. Or, if you’re having a hard day, you can put a request on Facebook or ask in a text if someone is willing to reach out and give you a call.
“My daughter gives me pep-talks daily, along with the loving that I need. I had deep brain stimulation surgery in February, and I appreciate her standing behind me all the way.”
Helps with errands and doctor's appointments
Keeping to a schedule, getting the errands done, and managing medicine can all be huge tasks to accomplish. For some of you, having the physical help with errands and other tasks is immeasurably helpful in getting through the days.
“Jennifer, my daughter and my caregiver whom doesn’t live with me, does my weekly grocery shopping, takes me to my doctor appointments, picks up my meds and puts my meds into my med boxes. I’d be lost without my daughter Jennifer.”
The act of praying may seem like a simple thing, but this act has profound effects. Who doesn’t feel comforted knowing that someone else is thinking about us? Whether or not you believe in the power of prayer doesn’t always matter. Sometimes just knowing that someone else does, and is, praying for us and our wellbeing is huge.
“Praying every day.”
Provides love and emotional support
To have the love and emotional support from another person is the greatest gift in living with Parkinson’s. Loneliness can be one of the hardest parts of the disease, so to have a connection with someone else helps beyond measure.
“She is so sweet and a kind and loving person!”
We want to say thank you to everyone who participated in this story about Parkinson’s. We would not be a community without you.
Which of the following caffeinated beverages do you regularly consume?