Parkinson’s Community: Get Involved!

There are many ways for people with PD and their friends and family members to get involved in the Parkinson’s community. There are a number of national and regional non-profit organizations involved in advocacy or fundraising for research, awareness activities, and providing opportunities for people with PD to connect with each other. In addition, many people with PD and their family members want to get involved with clinical trials to help move research forward.

Parkinson’s Disease Awareness Month

April is Parkinson’s Disease Awareness Month, and many organizations have activities to engage in, such as:

Fundraising

There are many opportunities to assist in fundraising to help raise monies for PD research.

  • The Michael J. Fox Foundation for Parkinson’s Research has Team Fox, a grassroots community fundraising program that enables individuals to create their own unique fundraiser or participate in other Team Fox fundraisers. They also sponsor Fox Trot, a run/walk event hosted in several cities across the country.
  • The National Parkinson Foundation hosts Moving Day, a fundraising walk, as well as Team Hope, fundraising events that are organized by individuals and includes endurance events, like marathons.
  • American Parkinson Disease Association provides a number of local fundraising events, like walks and other activities, that people can get involved with.
  • The Parkinson Alliance hosts the Unity Walk as well as other events, including performances and food and wine evenings.

Clinical trials

Clinical trials are an important part of the scientific process to find and prove the effectiveness and safety of new medications and treatments. For diseases like Parkinson’s disease (PD), where the exact cause is still unknown and there are no current treatments that can cure or slow the progression of the disease, clinical trials are essential to find the answers.1,2

There are two ways to find a trial related to PD:

  • The Michael J. Fox Foundation for Parkinson’s Research has created the Fox Trial Finder, a matching tool that helps connect people with the trials that are appropriate for them, whether they have PD or not. By creating a profile on the website, volunteers are notified about trials in their region that are recruiting.1
  • The U.S. National Institutes of Health also has a database of clinical trials at their website ClinicalTrials.gov. The NIH site lists trials that are being conducted around the world.3
Written by: Emily Downward | Last reviewed: March 2017
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