On Adaptive Tools, Pride, and Parkinson’sLast year, I sent my dad a pair of adaptive shoes and an adaptive (magnetic) shirt, thinking that they might be able to take some of the frustration out of... By MaryBeth Skylis3 min readBookmark for laterReactions 0 reactions Comments1 comments
Increasing Exercise for Parkinson’s: The Benefits I ExperiencedRecently, I stayed at an inpatient rehabilitation facility due to an exacerbation of my Parkinson’s disease. During my 3-week stay, I decided to compare the amount of time that I... By Marc Mitnick2 min readBookmark for laterReactions 0 reactions Comments15 comments
May I Help You?In 2013 I received a diagnosis of a rare movement disorder known as primary orthostatic tremor which affects your legs only upon standing. The tremors stop as soon as you... By Thea Destephano2 min readBookmark for laterReactions 0 reactions Comments0 comments
Trying to Remain as Independent as Possible with Parkinson'sAsk not what others can do for you, ask what you can do independently for yourself. My apologies for borrowing inspiration from President John F. Kennedy, I feel that we... By Marc Mitnick3 min readBookmark for laterReactions 0 reactions Comments6 comments
Soft Texture Breakfast Foods for Parkinson’s DiseaseNavigating mealtime while managing Parkinson’s disease (PD) can feel like no small feat some days. Many people with Parkinson's struggle with dysphagia, or difficulty swallowing. This makes many foods hard... By Melissa Halas, MA, RDN, CDE3 min readBookmark for laterReactions 0 reactions Comments1 comments
Community Shares: My Shingles SurpriseRecently, members of our community discussed shingles. Shingles symptoms are uncomfortable, and they can be more severe when combined with autoimmune diseases. It is always an unwelcome surprise when shingles... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
A Personal Perspective on What Depression Feels LikeContent Note: This article describes experiences with suicidal thoughts. If you or a loved one are struggling, consider reading our mental health resources page. Posy objects to those pseudo-heartfelt posts... By Posy6 min readBookmark for laterReactions 0 reactions Comments4 comments
Flow to HappinessFor many people with Parkinson’s, the idea of joyful living stands in complete opposition to where they are now forced to exist. This seems logical since the idea of jubilation... By Dan Glass4 min readBookmark for laterReactions 0 reactions Comments7 comments
Losing Your Voice to Parkinson’s DiseaseDad’s voice is a whisper when I pick up the phone on one particularly chilly afternoon. "Hi, Mary Beth," the person on the other end is like a gust of... By MaryBeth Skylis2 min readBookmark for laterReactions 0 reactions Comments4 comments
The 3 Fs of Parkinson’sI actually began seeing a movement disorder specialist for another disorder about 7 years before I was diagnosed with Parkinson’s disease (PD). Primary orthostatic tremor is a neurological condition that... By Thea Destephano2 min readBookmark for laterReactions 0 reactions Comments18 comments
On Parkinson's and Finding Comfort in MusicThe winter sky is a black abyss by 6:00 PM in the Rocky Mountains, which creates a knot of inner turmoil in my gut. The evenings feel hopeless, like we’ll... By MaryBeth Skylis2 min readBookmark for laterReactions 0 reactions Comments5 comments
What I Thought Was Eczema Turned Out to Be ShinglesEditor’s note: This article was written by Health Leader Cora Lyn Sears and originally appeared on our partner site AtopicDermatitis.net. She describes her experience of having shingles while living with... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Hurt of Horrible HandwritingParkinson’s disease (PD) has taken a lot from me as a person. It is definitely more of a taker than a giver in that sense. Some of the things it... By Shamsa3 min readBookmark for laterReactions 0 reactions Comments36 comments
Staying in a Rehab Center: What I Expected Versus What I ExperiencedIt can happen to all of us now or later ... I went to the hospital. I experienced a urinary tract infection and was treated by my primary care doctor... By Marc Mitnick3 min readBookmark for laterReactions 0 reactions Comments4 comments
How to Master Mealtime While Managing Parkinson’s SymptomsGetting ready for mealtime when managing Parkinson’s disease is no small feat. Symptoms can often interfere with kitchen skills such as chopping, peeling, and cooking – making your favorite recipes... By Melissa Halas, MA, RDN, CDE3 min readBookmark for laterReactions 0 reactions Comments3 comments
Coping with Parkinson's Disease Through LaughterI’ve found laughing a lot every day to be one of my major Parkinson’s coping skills. Laughing or even smiling seems to break up negative thinking and can lighten up even... By Phil Horton2 min readBookmark for laterReactions 0 reactions Comments3 comments
Parkinson's Sleep Time AdventuresLately, my sleep routine has been transforming into something different. As a result, I’ve been making some adjustments to counter obstacles over time, and they’ve allowed for a difference in... By Dan Glass5 min readBookmark for laterReactions 0 reactions Comments6 comments
Shingles: Good Reason to Boost My Immune SystemEditor’s note: This article was written by Health Leader Jacqueline Harmon and originally appeared on our partner site BladderCancer.net. She shares her experience with shingles while living with multiple serious... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Community Shares: The Painful Reality of ShinglesWe asked our community of Health Leaders to share about their shingles experiences. What topped the list of challenges when dealing with a shingles infection? PAIN! It’s no surprise that... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
The Whale and PD: Overcoming Feelings of EmbarrassmentBefore the Academy Awards, I try to watch the movies nominated for best picture. This year that was a tall order as there were a total of 10 nominations. While... By John Bennett2 min readBookmark for laterReactions 0 reactions Comments5 comments